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Identifying the key elements of an education package to up-skill multidisciplinary adult specialist palliative care teams caring for young adults with life-limiting conditions: an online Delphi study
  1. Stephanie Sivell1,
  2. Victoria Lidstone2,
  3. Mark Taubert3,4,
  4. Catherine Thompson5 and
  5. Annmarie Nelson1
  1. 1Marie Curie Palliative Care Research Centre, Institute for Translation, Innovation, Methodology and Engagement (TIME), Cardiff University School of Medicine, Cardiff, Wales, UK
  2. 2University Hospital of Wales, Cardiff and Vale University Health Board, Cardiff, Wales, UK
  3. 3Velindre Cancer Centre, Velindre NHS Trust, Cardiff, Wales, UK
  4. 4Cardiff and Vale University Health Board, Cardiff, Wales, UK
  5. 5Ty^ Hafan Children's Hospice, Sully, Wales, UK
  1. Correspondence to Dr Stephanie Sivell, Marie Curie Research Associate, Marie Curie Palliative Care Research Centre, Institute for Translation, Innovation, Methodology and Engagement (TIME), Cardiff University School of Medicine, Neuadd Meirionnydd, Heath Park, Cardiff, Wales CF14 4YS, UK; sivells2{at}cf.ac.uk

Abstract

Objectives To collect the views of experts to inform the development of an education package for multidisciplinary adult specialist palliative care (SPC) teams caring for young people with life-limiting conditions.

Methods A modified online Delphi process collated expert opinion on format, delivery and content of an education package to up-skill adult SPC teams. Round 1 participants (n=44) answered free-text questions, generating items for Round 2. In Round 2, 68 participants rated the extent to which they agreed/disagreed with the items on 5-point Likert-type scales. Median and mean scores assessed the importance of each item. IQR scores assessed level of consensus for each item; items lacking consensus were rerated by 35 participants in Round 3.

Results In the Delphi, consensus was reached on a range of suggested formats, on who should deliver the training, and on several clinical, psychosocial and practical topics.

Conclusions Development of a continuous/rolling programme of education, tailored for content and mode of delivery and incorporated into working practice is recommended. As a direct outcome of the results of this study, a series of six linked study days has been established, focusing specifically on the issues around caring for young adults with life-limiting conditions and palliative care needs.

  • Palliative care
  • education and training

This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 3.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/3.0/

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