[HTML][HTML] How does ethnicity affect presence of advance care planning in care records for individuals with advanced disease? A mixed-methods systematic review

J Crooks, S Trotter… - BMC Palliative Care, 2023 - Springer
Background Advance care planning (ACP) is the process supporting individuals with life-
limiting illness to make informed decisions about their future healthcare. Ethnic disparities in …

[HTML][HTML] Does ethnicity affect pain management for people with advanced disease? A mixed methods cross-national systematic review of 'very high'Human …

G Clarke, E Chapman, J Crooks, J Koffman… - BMC Palliative Care, 2022 - Springer
Background Racial disparities in pain management have been observed in the USA since
the 1990s in settings such as the emergency department and oncology. However, the …

[HTML][HTML] Bereavement care for ethnic minority communities: a systematic review of access to, models of, outcomes from, and satisfaction with, service provision

CR Mayland, RA Powell, GC Clarke, B Ebenso… - PLoS …, 2021 - journals.plos.org
Objectives To review and synthesize the existing evidence on bereavement care, within the
United Kingdom (UK), for ethnic minority communities in terms of barriers and facilitators to …

[HTML][HTML] How are treatment decisions made about artificial nutrition for individuals at risk of lacking capacity? A systematic literature review

G Clarke, K Harrison, A Holland, I Kuhn, S Barclay - PLoS One, 2013 - journals.plos.org
Background Worldwide, the number of individuals lacking the mental capacity to participate
in decisions about their own healthcare is increasing. Due to the ageing global population …

[HTML][HTML] Planning for an uncertain future in progressive neurological disease: a qualitative study of patient and family decision-making with a focus on eating and …

G Clarke, E Fistein, A Holland, J Tobin, S Barclay… - BMC neurology, 2018 - Springer
Background Dysphagia and other eating and drinking difficulties are common in progressive
neurological diseases. Mealtimes can become a major source of difficulty and anxiety for …

What is the impact of clinically assisted hydration in the last days of life? A systematic literature review and narrative synthesis

A Kingdon, A Spathis, R Brodrick, G Clarke… - BMJ supportive & …, 2021 - spcare.bmj.com
Background Clinically assisted hydration (CAH) can be provided in the last days of life as
drinking declines. The impact of this practice on quality of life or survival in the last days of …

[HTML][HTML] Preferences for care towards the end of life when decision-making capacity may be impaired: A large scale cross-sectional survey of public attitudes in Great …

G Clarke, E Fistein, A Holland, M Barclay, P Theimann… - Plos one, 2017 - journals.plos.org
Background There is continuing public debate about treatment preferences at the end of life,
and the acceptability and legal status of treatments that sustain or end life. However, most …

[HTML][HTML] Eating and drinking interventions for people at risk of lacking decision-making capacity: who decides and how?

G Clarke, S Galbraith, J Woodward, A Holland… - BMC Medical …, 2015 - Springer
Background Some people with progressive neurological diseases find they need additional
support with eating and drinking at mealtimes, and may require artificial nutrition and …

[HTML][HTML] Communication of palliative care needs in discharge letters from hospice providers to primary care: a multisite sequential explanatory mixed methods study

K Weetman, J Dale, SJ Mitchell, C Ferguson… - BMC palliative …, 2022 - Springer
Background The provision of palliative care is increasing, with many people dying in
community-based settings. It is essential that communication is effective if and when patients …

Palin parent-child interaction therapy with children with autism spectrum disorder and stuttering

R Preston, M Halpin, G Clarke, S Millard - Journal of Communication …, 2022 - Elsevier
Introduction It is estimated that 8% of children who stutter (CWS) have autism spectrum
disorder (ASD) Briley & Ellis (2018). There is evidence that interventions for CWS and …