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Palliative care research centre's move into social media: constructing a framework for ethical research, a consensus paper

N Hopewell-Kelly, J Baillie, S Sivell… - BMJ supportive & …, 2019 - spcare.bmj.com
Background Social media (SM) have altered the way we live and, for many, the way we die.
The information available on even the rarest conditions is vast. Free from restrictions of …
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[PDF] bmj.com

Gaining an accurate reflection of the reality of palliative care through the use of free-text feedback in questionnaires: the AFTER study

AV Bowyer, I Finlay, J Baillie, A Byrne… - BMJ Supportive & …, 2019 - spcare.bmj.com
Background In healthcare, many service evaluation questionnaires use free-text boxes
without formal mechanisms for analysis. Patients and carers spend time documenting …
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O-20 Developing and embedding a youth social action culture in a paediatric hospice

A Bowyer, L Phelps, K Simmons - 2023 - spcare.bmj.com
Background Tŷ Hafan hospice supports children with life-shortening conditions and their
families. Historically, decision-making within the hospice has utilised a top-down approach …
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After iWantGreatCare: Service user feedback as a means of refining the iWantGreatCare questionnaire

A Bowyer, I Finlay, A Byrne, J McCarthy… - BMJ Supportive & …, 2014 - spcare.bmj.com
Introduction In 2009 the Palliative Care Implementation Board developed a survey to
evaluate palliative care service provision in Wales. Through the use of the iWantGreatCare …
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The use of social media in a palliative care research centre

N Hopewell-Kelly, J Baillie, S Sivell… - BMJ Supportive & …, 2015 - spcare.bmj.com
Introduction Online communities are full of discussions about illness, death and dying and
these communications are increasingly repositioned within research environments as …
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