Referral to palliative care in COPD and other chronic diseases: a population-based study

Respir Med. 2013 Nov;107(11):1731-9. doi: 10.1016/j.rmed.2013.06.003. Epub 2013 Jun 27.

Abstract

Aim: To describe how patients with COPD, heart failure, dementia and cancer differ in frequency and timing of referral to palliative care services.

Methods: We performed a population-based study with the Sentinel Network of General Practitioners in Belgium. Of 2405 registered deaths respectively 5%, 4% and 28% were identified as from COPD, heart failure or cancer and 14% were diagnosed with severe dementia. GPs reported use and timing of palliative care services and treatment goals in the final three months of life.

Results: Patients with COPD (20%) were less likely than those with heart failure (34%), severe dementia (37%) or cancer (60%) to be referred to palliative care services (p < 0.001). The median days between referral and death was respectively 10, 12, 14 and 20. Patients with COPD who were not referred more often received treatment with a curative or life-prolonging goal and less often with a palliative or comfort goal than did the other patients who were not referred.

Conclusion: Patients with COPD are underserved in terms of palliative care compared to those with other chronic life-limiting diseases. Awareness of palliative care as an option for patients with COPD needs to increase in palliative care services, physicians and the general public.

Keywords: COPD; Dementia; Heart failure; Neoplasms; Palliative care; Referral.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adolescent
  • Adult
  • Aged
  • Aged, 80 and over
  • Belgium
  • Chronic Disease
  • Dementia / therapy
  • Family Practice / organization & administration
  • Female
  • Heart Failure / therapy
  • Humans
  • Male
  • Middle Aged
  • Neoplasms / therapy
  • Palliative Care / organization & administration
  • Palliative Care / statistics & numerical data*
  • Pulmonary Disease, Chronic Obstructive / therapy*
  • Referral and Consultation / organization & administration
  • Referral and Consultation / statistics & numerical data*
  • Residence Characteristics
  • Retrospective Studies
  • Sentinel Surveillance
  • Time Factors
  • Young Adult