Bereaved carers' views of a hospice at home service

Int J Palliat Nurs. 2005 May;11(5):242-6. doi: 10.12968/ijpn.2005.11.5.242.

Abstract

Introduction: In recent years, there has been an increase in specialist palliative care services in the home. Despite this, there have been relatively few published evaluations of such care.

Methods: This is a qualitative study which used semistructured interviews to explore bereaved carers' views and experiences of a hospice at home (HAH) service in the East Midlands, UK. Eleven interviews were conducted and analysis followed the framework approach.

Results: Carers' views were divided into four themes: caring for someone at home; formal care provided by HAH; access to out-of-hours care; and provision of specialist equipment.

Conclusions: Bereaved carers generally gave very positive accounts on care delivered by the HAH service. Shortcomings identified were the provision of out-of-hours care and the untimely supply and removal of specialist equipment. It is suggested that bereaved carers provide useful insights for qualitative evaluations of end-of-life services delivered in the home.

Publication types

  • Evaluation Study
  • Research Support, Non-U.S. Gov't

MeSH terms

  • After-Hours Care / standards
  • Attitude to Health*
  • Bereavement*
  • Caregivers / psychology*
  • Community Health Nursing / standards*
  • Empathy
  • England
  • Family / psychology*
  • Female
  • Focus Groups
  • Health Services Accessibility / standards
  • Health Services Needs and Demand
  • Home Care Services / standards*
  • Hospice Care / psychology
  • Hospice Care / standards*
  • Humans
  • Male
  • Middle Aged
  • Nursing Evaluation Research
  • Nursing Methodology Research
  • Program Evaluation
  • Qualitative Research
  • Surveys and Questionnaires