Original Article
Factors Influencing Agreement in Symptom Ratings By Lung Cancer Patients and Their Significant Others

https://doi.org/10.1016/j.jpainsymman.2006.07.019Get rights and content
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Abstract

Comparisons of symptom ratings and health-related quality of life between significant others and patients have been the focus of numerous studies during the past decades. Additional studies are needed to assess the discrepancies identified in this work. In the present cross-sectional exploratory study, focus has been on evaluating the accuracy of significant other proxy ratings and on investigating factors that influence agreement between lung cancer patients and significant others based on dyadic assessments from 52 patients and 54 significant others. Results indicate that the levels of agreement are fair to good, but that significant others consistently rate the patients' symptoms higher and functioning lower than the patients do themselves. Factors found to influence agreement in various dimensions of symptoms and functioning were gender, patient age, and significant others' self-reported lack of family support, health problems, and caregiver esteem.

Key Words

Significant others
family caregivers
lung cancer
palliative care
proxy
quality of life
symptom
assessment

Cited by (0)

The study of lung cancer patients' significant others was generously supported by grants from the Swedish Cancer Society, The Vårdal Foundation for Health Care Sciences and Allergy Research, and the Research Board of the Center for Health Care Sciences at Karolinska Institutet. The study of symptom experiences in patients with lung cancer also received funding from the above instances, as well as from the Heart-Lung Foundation and the Swedish National Research Council.