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Death and dying from old people’s point of view. A literature review

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Abstract

Providing high-quality end-of-life care to older people is a requirement especially for countries with a high proportion of old and very old people. This calls for an understanding of older people’s view of death and dying, and one way forward is to investigate the current knowledge base. This study aimed at reviewing the literature of empirical studies about older people’s view of death and dying, whether in a terminal phase of life or not. A total of 33 publications were included, identified in a stepwise literature search done in Medline, CINAHL and PsychInfo, using the terms “death”, “attitude to death”, “death” and “dying” in combination with “aged”. Very few studies focused solely on the oldest old. The designs were mainly cross-sectional, quantitative or qualitative, using personal interviews. Some common themes of importance for further research were revealed, such as older people’s readiness to talk about death and dying, conceptions of death, after-death and dying, and were seemingly related to anxiety about death, the impact on and of those close by, having both negative and positive connotations, especially related to balancing closeness, being a burden and dependency, death anxiety and its possible antecedents, the fine line between natural sadness and suffering from depression, and worry about the end-of-life phase. The lack of studies dealing with older people’s view of death and dying, and the heterogeneity with regard to research questions and samples implies that findings may serve mainly as inspiration for further research.

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References

  1. Cameron ME. Older persons’ ethical problems involving their health. Nurs Ethics 2002; 9: 537–56.

    Article  PubMed  Google Scholar 

  2. Thome B, Dykes AK, Hallberg IR. Quality of life in old people with and without cancer. Qual Life Res 2004 (in press).

  3. Brock DB, Foley DJ, Salive ME. Hospital and nursing home use in the last three months of life. J Aging Health 1996; 8: 307–19.

    Article  PubMed  CAS  Google Scholar 

  4. Burge F, Lawson B, Johnston G. Trends in the place of death of cancer patients, 1992–1997. CMAJ 2003; 168: 265–70.

    PubMed  Google Scholar 

  5. Grande GE, Addington-Hall JM, Todd CJ. Place of death and access to home care services: are certain patient groups at a disadvantage? Soc Sci Med 1998; 47: 565–79.

    Article  PubMed  CAS  Google Scholar 

  6. Glare P, Virik K, Jones M, Hudson M, Eychmuller S, Simes J. A systematic review of physicians’ survival predictors in terminally ill cancer patients. BMJ 2003; 327: 195–200.

    Article  PubMed  Google Scholar 

  7. Somogyi-Zalud E, Zhong Z, Lynn J, Hamel MB. Elderly persons’ last six months of life: findings from the Hospitalized Elderly Longitudinal Project. J Am Geriatr Soc 2000; 48: S131–9.

    PubMed  CAS  Google Scholar 

  8. Clark D, Seymor J. Reflections on palliative care. Buckingham: Open University Press Buckingham, 1999.

    Google Scholar 

  9. Ottosson J-O, Ed. Patient-lakarrelationen: läkekonst på veten-skaplig grund. (The patient-doctor relationship). Stockholm: Natur och Kultur, 1999: 282–308.

    Google Scholar 

  10. Kastenbaum R. Death and dying. In Birren JE, Ed. Encyclopedia of gerontology, age, aging and the aged. San Diego: Academic Press, 1996: 361–81.

    Google Scholar 

  11. Redinbaugh EM, Sullivan AM, Block SD, et al. Doctors’ emotional reactions to recent death of a patient: cross sectional study of hospital doctors. BMJ 2003; 327:185–90.

    Article  PubMed  Google Scholar 

  12. Thome B. Living with cancer in old age: quality of life and meaning. Bulletin No. 14. Lund: Lund University, Faculty of Medicine, 2003 (Thesis).

    Google Scholar 

  13. Aiken LR. Aging: an introduction to gerontology. Oxford: Sage, 1995: 366–98.

    Google Scholar 

  14. Ingebretsen R, Solem PE. Death, dying and bereavement. In Nordhus I, VandenBos G, Berg S, Fromholt P, Eds. Clinical geropsychology. Washington: American Psychological Association, 1998: 177–81.

    Chapter  Google Scholar 

  15. Kenyon G, Clark P, de Vries B, Eds. Narrative gerontology: theory, research and practice. New York: Springer Publishing Company, 2001: 3–62.

    Google Scholar 

  16. Kubler-Ross E. On death and dying. London: Tavistock, 1970.

    Google Scholar 

  17. Reker GR, Wong PTP. Aging as an individual process: toward a theory of personal meaning. In Birren JE, Bengtsson VL, Eds. Emergent theories of aging. New York: Springer Publishing Company, 1999: 214–46.

    Google Scholar 

  18. Erikson EH, Erikson JM, Kivnick HQ. Vital involvement in old age: the experience of old age in our time. New York: W.W. Norton & Company, 1986.

  19. Goodman C. Literature searching and evidence interpretation for assessing health care practices. Stockholm: SBU, 1993.

    Google Scholar 

  20. Leichtentritt DR, Rettig DK. The good death: reaching an inductive understanding. Omega 2000; 41: 221–48.

    PubMed  CAS  Google Scholar 

  21. Van der Geest S. I want to go: how older people in Ghana look forward to death. Aging Soc 2000; 22: 7–28.

    Google Scholar 

  22. Fry PS. A factor analytic investigation of home-bound elderly individuals concerns about death and dying, and their coping responses. J Clin Psychol 1990; 46: 737–48.

    Article  PubMed  CAS  Google Scholar 

  23. Rao R, Dening T, Brayne C, Huppert FA. Attitudes toward death: a community study of octogenarians and nonagenarians. Int Psychogeriatr 1997; 9: 213–21.

    Article  PubMed  CAS  Google Scholar 

  24. Cicirelli VG. Personal meanings of death in older adults and young adults in relation to their fears of death. Death Stud 2001; 25: 663–83.

    Article  PubMed  CAS  Google Scholar 

  25. Carmel S. The will to live: gender differences among elderly persons. Soc Sci Med 2001; 52: 949–58.

    Article  PubMed  CAS  Google Scholar 

  26. Cataldo JK. Hardiness and death attitudes: predictors of depression in the institutionalized elderly. Arch Psychiatr Nurs 1994; 8: 326–32.

    Article  PubMed  CAS  Google Scholar 

  27. Fortner BV, Neimeyer RA. Death anxiety in older adults: a quantitative review. Death Stud 1999; 23: 387–411.

    Article  PubMed  CAS  Google Scholar 

  28. Cicirelli VG. Personality and demographic factors in older adults’ fear of death. Gerontologist 1999; 39: 569–79.

    Article  PubMed  CAS  Google Scholar 

  29. Wu AM, Tang CS, Kwok TC. Death anxiety among Chinese elderly people in Hong Kong. J Aging Health 2002; 14: 42–56.

    Article  PubMed  Google Scholar 

  30. Sullivan M, Ormel J, Kempen GI, Tymstra T. Beliefs concerning death, dying, and hastening death among older, functionally impaired Dutch adults: a one-year longitudinal study. J Am Geriatr Soc 1998; 46: 1251–7.

    PubMed  CAS  Google Scholar 

  31. Cicirelli VG. Older adults views on death. New York: Springer Publishing Company, 2002.

    Google Scholar 

  32. Williams RA. A protestant legacy: attitudes to death and illness among older Aberdonians. Oxford: Clarendon Press, 1990.

    Google Scholar 

  33. Hinton J. The progress of awareness and acceptance of dying assessed in cancer patients and their caring relatives. Palliat Med 1999; 13: 19–35.

    Article  PubMed  CAS  Google Scholar 

  34. Langley-Evans A, Payne S. Light-hearted death talk in a palliative day care context. J Adv Nurs 1997; 26: 1091–7.

    PubMed  CAS  Google Scholar 

  35. Yedidia MJ, MacGregor B. Confronting the prospect of dying: reports of terminally ill patients. J Pain Symptom Manage 2001; 22: 807–19.

    Article  PubMed  CAS  Google Scholar 

  36. Carrese JA, Mullaney JL, Faden RR, Finucane TE. Planning for death but not serious future illness: qualitative study of housebound elderly patients. BMJ 2002; 325: 125.

    Article  PubMed  Google Scholar 

  37. Vig EK, Davenport NA, Pearlman RA. Good deaths, bad deaths, and preferences for the end of life: a qualitative study of geriatric outpatients. J Am Geriatr Soc 2002; 50: 1541–8.

    Article  PubMed  Google Scholar 

  38. Kelner M. Activists and delegators: elderly patients’ preferences about control at the end of life. Soc Sci Med 1995; 41: 537–45.

    Article  PubMed  CAS  Google Scholar 

  39. Cicirelli VG. Elders’ end-of-life decisions: implications for hospice care. Hosp J 1997; 12: 57–72.

    Article  PubMed  CAS  Google Scholar 

  40. Wilson DM. End-of-life care preferences of Canadian senior citizens with caregiving experience. J Adv Nurs 2000; 31: 1416–21.

    Article  PubMed  CAS  Google Scholar 

  41. Rosenfeld KE, Wenger NS, Kagawa-Singer M. End-of-life decision making: a qualitative study of elderly individuals. J Gen Intern Med 2000; 15: 620–5.

    Article  PubMed  CAS  Google Scholar 

  42. Steinhauser KE, Clipp EC, McNeilly M, Christakis NA, McIntyre LM, Tulsky JA. In search of a good death: observations of patients, families, and providers. Ann Intern Med 2000, 132: 825–32.

    Article  PubMed  CAS  Google Scholar 

  43. Steinhauser KE, Christakis NA, Clipp EC, McNeilly M, McIntyre L, Tulsky JA. Factors considered important at the end of life by patients, family, physicians, and other care providers. JAMA 2000; 284: 2476–82.

    Article  PubMed  CAS  Google Scholar 

  44. Leichtentritt RD, Rettig KD. Values underlying end-of-life decisions: a qualitative approach. Health Soc Work 2001; 26: 150–9.

    Article  PubMed  CAS  Google Scholar 

  45. Chochinov HM, Hack T, Hassard T, Kristjanson LJ, McClement S, Harlos M. Dignity in the terminally ill: a cross-sectional, cohort study. Lancet 2002; 360: 2026–30.

    Article  PubMed  Google Scholar 

  46. Lo RS, Woo J, Zhoc KC, et al. Quality of life of palliative care patients in the last two weeks of life. J Pain Symptom Manage 2002; 24: 388–97.

    Article  PubMed  Google Scholar 

  47. Chochinov HM, Wilson KG, Enns M, et al. Desire for death in the terminally ill. Am J Psychiatry 1995; 152: 1185–91.

    PubMed  CAS  Google Scholar 

  48. Kelly B, Burnett P, Pelusi D, Badger S, Varghese F, Robertson M. Terminally ill cancer patients’ wish to hasten death. Palliat Med 2002; 16: 339–45.

    Article  PubMed  CAS  Google Scholar 

  49. Breitbart W, Rosenfeld B, Pessin H, et al. Depression, hopelessness, and desire for hastened death in terminally ill patients with cancer. JAMA 2000; 284: 2907–11.

    Article  PubMed  CAS  Google Scholar 

  50. Engle VF, Fox-Hill E, Graney MJ. The experience of living-dying in a nursing home: self-reports of black and white older adults. J Am Geriatr Soc 1998; 46: 1091–6.

    PubMed  CAS  Google Scholar 

  51. McKinlay EM. Within the circle of care: patient experiences of receiving palliative care. J Palliat Care 2001; 17: 22–9.

    PubMed  CAS  Google Scholar 

  52. Singer PA, Martin DK, Kelner M. Quality end-of-life care: patients’ perspectives. JAMA 1999; 281: 163–8.

    Article  PubMed  CAS  Google Scholar 

  53. Aday RH, Shahan DR. Elderly reactions to a death education program in a nursing home setting. Gerontol Geriatr Educ 1995; 15: 3–18.

    Article  Google Scholar 

  54. Hallberg IR. Brytpunkter under åldrandet av relevans för vård och omsorg. (Turning points in the aging process relevant for nursing care). Incitament 2003; 12: 331–5.

    Google Scholar 

  55. Given B, Given CW. Cancer nursing for the elderly. A target for research. Cancer Nurs 1989; 12: 71–7.

    CAS  Google Scholar 

  56. Bauman Z. Mortality, immortality and other life strategies. Cambridge: Polity, 1992.

    Google Scholar 

  57. Kaufman SR. Senescence, decline and the quest for a good death: contemporary dilemmas and historical antecedents. J Aging Studies 2000; 14: 1–23.

    Article  Google Scholar 

  58. Merriam SB. Butler’s life review: how universal is it? Int J Aging Hum Dev 1993; 37: 163–75.

    Article  PubMed  CAS  Google Scholar 

  59. Byock IR. The nature of suffering and the nature of opportunity at the end of life. Clin Geriatr Med 1996; 12: 237–52.

    PubMed  CAS  Google Scholar 

  60. Öberg P. Livet som en berättelse: om biografi och åldrande (Life as a narrative: on biography and aging). Uppsala: Acta Universitatis Upsaliensis, 1997 (Thesis).

    Google Scholar 

  61. Baugher RJ, Burger C, Smith R, Wallston K. A comparison of terminally ill persons at various time periods to death. Omega 1989–90; 20: 103–15.

    Google Scholar 

  62. Dobratz MC. Causal influences of psychological adaptation in dying. West J Nurs Res 1993; 15: 24–9, 708–24.

    Article  Google Scholar 

  63. Linden M, Barnow S. 1997 IPA/Bayer Research Awards in Psychogeriatrics. The wish to die in very old persons near the end of life: a psychiatric problem? Results from the Berlin Aging Study. Int Psychogeriatr 1997; 9: 291–307.

    Article  CAS  Google Scholar 

  64. Pinquart M, Sörensen S. Preparation for death and preparation for care in older community-dwelling adults. Omega 2002; 45: 69–88.

    Google Scholar 

  65. Lawton MP, Moss M, Hoffman C, Grant R, Ten Have T, Kleban MH. Health, valuation of life, and the wish to live. Gerontologist 1999; 39: 406–16.

    Article  PubMed  CAS  Google Scholar 

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  1. The Swedish Institute for Health Sciences, Lund University, PO Box 187, SE 221 00, Lund, Sweden

    Ingalill Rahm Hallberg

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Correspondence to Ingalill Rahm Hallberg.

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Review article based on the 2nd Andrus Viidik Lecture in Gerontology at the 17th Nordic Congress of Gerontology, Stockholm, Sweden, May 23–26, 2004. The Nordic Gerontological Federation (NGF) initiated these lectures when Professor Viidik retired from the NGF, after being its secretary 1974–1988 and chairman 1988–2002.

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Hallberg, I.R. Death and dying from old people’s point of view. A literature review. Aging Clin Exp Res 16, 87–103 (2004). https://doi.org/10.1007/BF03324537

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