Family caregivers of children and adolescents with rare diseases: a novel palliative care intervention
Maureen E Lyon, Jessica D Thompkins, Karen Fratantoni, Jamie L Fraser, Sandra E Schellinger, Linda Briggs, Sarah Friebert, Samar Aoun, Yao Iris Cheng, Jichuan Wang
BMJ Supportive & Palliative Care Nov 2022, 12 (e5) e705-e714; DOI: 10.1136/bmjspcare-2019-001766