Type of experience | CNS name | Contacting CNS | Speaking to CNS | Understanding CNS | ||||||||||
Level of care experience | Not given* (n=2721) | Excellent (n=27 740) (72.1%) | Non-excellent (n=10 736) (28.9%) | Excellent (n=37 056) (90.6%) | Non-excellent (n=3852) (9.4%) | Excellent (n=34 898) (91.4%) | Non-excellent (n=3303) (8.6%) | |||||||
Variable | n | % | n | % | n | % | N | % | N | % | n | % | n | % |
Age group | ||||||||||||||
<45 | 470 | 17.3 | 3506 | 12.6 | 1894 | 17.6 | 4960 | 13.4 | 680 | 17.7 | 4786 | 13.7 | 640 | 19.4 |
45–59 | 1189 | 43.7 | 10 574 | 38.1 | 4761 | 44.3 | 14 494 | 39.1 | 1774 | 46.1 | 13 978 | 40.1 | 1397 | 42.3 |
60–74 | 812 | 29.8 | 10 687 | 38.5 | 3369 | 31.4 | 13 857 | 37.4 | 1155 | 30.0 | 12 857 | 36.8 | 1000 | 30.3 |
75–99 | 250 | 9.2 | 2973 | 10.7 | 712 | 6.6 | 3745 | 10.1 | 243 | 6.3 | 3277 | 9.4 | 266 | 8.1 |
χ2 and p value | χ2=515.5; p<0.001 | χ2=257.8; p<0.001 | χ2=166.4; p<0.001 | |||||||||||
Ethnicity | ||||||||||||||
White | 2268 | 83.4 | 23 244 | 83.8 | 8774 | 81.7 | 30 910 | 83.4 | 3162 | 82.1 | 29 159 | 83.6 | 2617 | 79.2 |
Non-white | 162 | 6.0 | 1219 | 4.4 | 707 | 6.6 | 1764 | 4.8 | 260 | 6.7 | 1622 | 4.6 | 311 | 9.4 |
Unknown | 291 | 10.7 | 3277 | 11.8 | 1255 | 11.7 | 4382 | 11.8 | 430 | 11.2 | 4117 | 11.8 | 375 | 11.4 |
χ2 and p value | χ2=84.4; p<0.001 | χ2=37.2; p<0.001 | χ2=147.7; p<0.001 | |||||||||||
Area | ||||||||||||||
East Midlands | 446 | 16.4 | 2374 | 8.6 | 932 | 8.7 | 3259 | 8.8 | 373 | 9.7 | 3002 | 8.6 | 323 | 9.8 |
East of England | 236 | 8.7 | 3321 | 12.0 | 1239 | 11.5 | 4412 | 11.9 | 439 | 11.4 | 4154 | 11.9 | 393 | 11.9 |
London | 312 | 11.5 | 2841 | 10.2 | 1607 | 15.0 | 4025 | 10.9 | 645 | 16.7 | 3839 | 11.0 | 537 | 16.3 |
North East | 71 | 2.6 | 1860 | 6.7 | 428 | 4.0 | 2244 | 6.1 | 155 | 4.0 | 2129 | 6.1 | 132 | 4.0 |
North West | 181 | 6.7 | 3284 | 11.8 | 1119 | 10.4 | 4198 | 11.3 | 417 | 10.8 | 3974 | 11.4 | 334 | 10.1 |
South East | 504 | 18.5 | 4202 | 15.1 | 1869 | 17.4 | 5876 | 15.9 | 607 | 15.8 | 5459 | 15.6 | 529 | 16.0 |
South West | 398 | 14.6 | 3387 | 12.2 | 1229 | 11.4 | 4535 | 12.2 | 422 | 11.0 | 4300 | 12.3 | 340 | 10.3 |
West Midlands | 429 | 15.8 | 3297 | 11.9 | 1126 | 10.5 | 4347 | 11.7 | 383 | 9.9 | 4072 | 11.7 | 353 | 10.7 |
Yorkshire & Humber | 144 | 5.3 | 3174 | 11.4 | 1187 | 11.1 | 4160 | 11.2 | 411 | 10.7 | 3969 | 11.4 | 362 | 11.0 |
χ2 and p value | χ2=751.5; p<0.001 | χ2=568.8; p<0.001 | χ2=550.4; p<0.001 | |||||||||||
IMD | ||||||||||||||
1—affluent | 692 | 25.4 | 6329 | 22.8 | 2536 | 23.6 | 8489 | 22.9 | 903 | 23.4 | 8106 | 23.2 | 679 | 20.6 |
2 | 620 | 22.8 | 6673 | 24.1 | 2565 | 23.9 | 8958 | 24.2 | 897 | 23.3 | 8474 | 24.3 | 750 | 22.7 |
3 | 579 | 21.3 | 5948 | 21.4 | 2388 | 22.2 | 8033 | 21.7 | 797 | 20.7 | 7577 | 21.7 | 660 | 20.0 |
4 | 504 | 18.5 | 4952 | 17.9 | 1846 | 17.2 | 6532 | 17.6 | 696 | 18.1 | 6090 | 17.5 | 630 | 19.1 |
5—deprived | 326 | 12.0 | 3838 | 13.8 | 1401 | 13.0 | 5044 | 13.6 | 559 | 14.5 | 4651 | 13.3 | 584 | 17.7 |
χ2 and p value | χ2=24.0; p=0.02 | χ2=20.8; p=0.008 | χ2=78.5; p<0.001 | |||||||||||
Route to diagnosis | ||||||||||||||
ER | 67 | 2.5 | 323 | 1.2 | 118 | 1.1 | 439 | 1.2 | 40 | 1.0 | 393 | 1.1 | 42 | 1.3 |
GP | 286 | 10.5 | 1857 | 6.7 | 871 | 8.1 | 2578 | 7.0 | 316 | 8.2 | 2427 | 7.0 | 280 | 8.5 |
Screening | 609 | 22.4 | 8317 | 30.0 | 2935 | 27.3 | 11 102 | 30.0 | 1051 | 27.3 | 10 389 | 29.8 | 846 | 25.6 |
Two-week referral | 1277 | 46.9 | 15 295 | 55.1 | 6061 | 56.5 | 20 366 | 55.0 | 2153 | 55.9 | 19 270 | 55.2 | 1867 | 56.5 |
Elective referral | 79 | 2.9 | 597 | 2.2 | 200 | 1.9 | 757 | 2.0 | 78 | 2.0 | 725 | 2.1 | 71 | 2.1 |
Unknown | 403 | 14.8 | 1351 | 4.9 | 551 | 5.1 | 1814 | 4.9 | 214 | 5.6 | 1694 | 4.9 | 197 | 6.0 |
χ2 and p value | χ2=649.2; p<0.001 | χ2=626.4; p<0.001 | χ2=637.3; p<0.001 | |||||||||||
Stage | ||||||||||||||
I | 560 | 20.6 | 7923 | 28.6 | 2663 | 24.8 | 10 549 | 28.5 | 940 | 24.4 | 9821 | 28.1 | 773 | 23.4 |
II | 791 | 29.1 | 9012 | 32.5 | 3394 | 31.6 | 11 879 | 32.1 | 1195 | 31.0 | 11 355 | 32.5 | 978 | 29.6 |
III | 237 | 8.7 | 2503 | 9.0 | 1025 | 9.5 | 3353 | 9.0 | 323 | 8.4 | 3142 | 9.0 | 343 | 10.4 |
IV | 170 | 6.2 | 779 | 2.8 | 318 | 3.0 | 1042 | 2.8 | 140 | 3.6 | 931 | 2.7 | 139 | 4.2 |
Unknown | 963 | 35.4 | 7523 | 27.1 | 3336 | 31.1 | 10 233 | 27.6 | 1254 | 32.6 | 9649 | 27.6 | 1070 | 32.4 |
χ2 and p value | χ2=281.8; p<0.001 | χ2=260.8; p<0.001 | χ2=290.4; p<0.001 |
All χ2 tested for differences between three groups (excellent, non-excellent and not having CNS) across all variables in the table.
*Patients who were not given a CNS name were asked to not report their experience with the other three CNS questions (contacting CNS, speaking to CNS and understanding CNS).
ER, emergency room; GP, general practitioner; IMD, Indices of Multiple Deprivation.