Table 1

Burden of disease participants’ status in the six focus groups

Mild DiseaseIntermediate SpinalIntermediate BulbarSevere Disease
Number of patients in each focus groupFocus #1:
8
Focus #3:
3
Total 11 8 3 0 0
Number of carer in each focus groupFocus #2:
12
Focus #4:
5
Focus #5:
4
Focus #6:
12
Total 33 12 5 4 12