Relationship between codes, descriptive themes and analytical themes
| Analytical themes | Descriptive themes | Codes |
| Uncertainty: introduction and adaptation | Experience of diagnosis Coping with diagnosis Thinking about the future | Feeling helpless during diagnostic period Waiting for diagnosis Diagnosis did not seem real Diagnosis brings uncertainty Planning ahead Identifying cause Trying to take control Waiting for appointments Seeking prognosis Knowledge helps to feel safe |
| A new normal | Relationships with family and friends Values and perspectives Day-to-day life | A lot of travel Constant presence of illness Condition continually demanding Constant hypervigilance Disruptions to everyday life Spontaneity is difficult Others do not understand Relationship with partner became stronger Conflict with partner Lack of support from friends and family |
| Professionals reinforcing fathers’ role perceptions | Emotional experiences Sharing of emotions and support Relationship with professionals | Lack of sensitivity from healthcare professionals Lasting emotional impact of hospital experience Lack of information Need reassurance from professionals Treated differently to mothers Lack of recognition of emotional strain Support more readily available for mothers Perceived as being the strong parent Need to be strong for others Loneliness for fathers |
| Working fathers: role conflict | Workplace experiences | Career adaption due to diagnosis Able to work remotely Lack of understanding at work Colleagues understanding Unable to concentrate Loss of employment Work restricts appointment attendance Pressure to succeed at work Opportunities for support restricted by work Would like more flexibility at work Pressures at home affected work |