Characteristics of CIs
| Variable | n (%) |
| Type of post (n=53) | |
| Combined (research and clinical) | 27 (51) |
| Research | 15 (28) |
| Clinical | 11 (21) |
| Discipline (n=53) | |
| Medicine | 33 (62) |
| Nursing | 5 (9) |
| Social science | 4 (8) |
| Allied Healthcare | 3 (6) |
| Education | 1 (2) |
| Natural science | 1 (2) |
| Other | 6 (11) |
| Time spent researching with CYP with LLC/LTI and their families (n=53) | |
| >16 years | 21 (40) |
| 11–15 years | 7 (13) |
| 6–10 years | 12 (23) |
| 1–5 years | 12 (23) |
| <1 year | 1 (2) |
| Number of studies recruiting CYP with LLC/LTI CI has been involved in (n=52) | |
| 11+ | 10 (19) |
| 6–10 | 16 (31) |
| 2–5 | 11 (21) |
| 1 | 15 (29) |
CI, chief investigator; CYP, children and young people; LLC, life-limiting condition; LTI, life-threatening illness.