Table 1

Specific examples of research use over time

Priority areaExamples of research use
Identification and coordination
  • Research on tools to improve identification of people for early palliative care, including those with frailty and organ failure (not just advanced cancer) was incorporated into training materials by Healthcare Improvement Scotland.20

  • Research on identification of people for a palliative care approach was used to inform the Scottish General Medical Services Direct Enhanced Services Palliative Care Scheme (2019) which rewarded General Practitioner Practices to systematically identify appropriate patients for palliative care and create a key information summary (shared electronic care coordination record) to better coordinate their care.

Experienced and needs based service commissioning
  • Research discussed at evidence review groups informed the development of Scottish Government Commissioning Guidance for Palliative and End of Life Care.21

Education and training
  • Research highlighted during the process informed the development and implementation of a national framework to support the palliative care learning and development needs of the health and social service workforce in Scotland.25

Children and young people
  • The process highlighted the low volume of Scotland-based research relating to children. Evidence gaps identified motivated a group of participants to discuss future collaborations and funding applications for research in this area and encouraged a clinical stakeholder involved in the evidence review groups to pursue a PhD in paediatric palliative care.

Bereavement
  • Research gaps identified led a group of researchers and service managers to develop their interests in bereavement research and plan an application for research funding.