Table 1

Clinical instrument example: OACC

InstrumentOOACC suite of measures1
DescriptionA collection of measures which individually assess a key aspect of palliative care, including questions relating to a patient’s stage of illness, functioning, symptoms, quality of life and those of their informal care givers.1 OACC data provide a perspective on a patient’s care, and when collated over a period of time, can be used to monitor and evaluate patients’ condition(41). OACC is a UK example of combining measures with similar examples found internationally (eg, Australian Palliative Care Outcomes Collaboration.47
Care settingOACC has been widely adopted in specialist palliative care settings81 but there is little evidence of uptake in non-specialist palliative care health and care settings. There are recognised barriers to using OACC in non-palliative care specialist settings, including those with high caseloads, as is typical in general practice and acute hospitals.82
Patient populationLimited to patients recognised to be ‘end of life’ or in receipt of palliative or end-of-life care, as it is a specific clinical tool focused on end-of-life care provision.
Measure feasibilityLimited without significant resourcing. While OACC is recommended to be included in routine clinical practice, it is not clear how data collected from healthcare organisations could be pooled for population-level analysis.
Care qualityHigh. OACC fulfils the European Association of Palliative Care Taskforce on Outcome Measurement83 recommendations1, and by combining a variety of measures addressed a wide spectrum of aspects related to quality care. The measure prioritises patients’ perspectives where possible, and provides contemporaneous data.
  • OACC, Outcome Assessment and Complexity Collaborative.