Cluster | Statement | Average importance rating |
Improve programming (overall importance rating=2.60) | ||
Community education and development | 2.72 | |
Be mindful of needs of other residents living in institutional facilities when providing a palliative approach to care. (32)* | 3.57 | |
Promote greater public awareness of living with a life-limiting conditions. (41) | 3.09 | |
Opportunities and resources | 2.49 | |
Create an adult make a wish programme. (2)* | 3.61 | |
Create more opportunities for young adults to connect socially in the community (38) | 2.70 | |
Develop a template for hiring private care aides. (61) | 2.65 | |
Offer web-based opportunities for young adults to connect on-line, share resources, tips and experience. (53) | 2.64 | |
Provide better information for finding adaptive technologies. (66) | 2.52 | |
Create a continuum of care (overall importance rating=2.21) | ||
Create a continuum of care | 2.21 | |
Remove the word 'palliative' replace with 'life-limiting' to make it more accessible. (42)* | 3.22 | |
Ensure contracted home care nursing agencies to send in ONLY qualified palliative care nurses. (59)* | 2.74 | |
Create young adult palliative care transition management plans and templates. (64)* | 2.57 | |
Establish a Young Adult Palliative Care System to ensure access to appropriate palliative care that is distinct from paediatric or adult programmes. (17) | 2.57 | |
Develop a holistic framework for assessing their needs and wants. (16) | 2.41 | |
Provide opportunities for discussion about future healthcare plans and needs among caregivers, young adults and family members. (18) | 2.30 | |
Engage family physicians. (55)* | 2.30 | |
Offer access to a palliative care consult team at any point. (60) | 2.26 | |
Develop collaborations among community supports, palliative approach to care and specialised teams. (10) | 2.22 | |
Provide a physiatrist (rehabilitation physicians). (1) | 2.22 | |
Share patient history and doctor reports with adult hospitals. (65)* | 2.22 | |
Improve funding (overall importance rating=2.20) | ||
Personal funding and eligibility criteria | 2.33 | |
Create a Disabled Status Card to prove needs when applying for equipment and services. (50)* | 2.74 | |
Provide support for young adults with children to manage all aspects of child care. (57) | 2.70 | |
Support transportation needs for recreation and leisure activities.(29) | 2.65 | |
Offer group homes in more cities. (6)* | 2.57 | |
Ensure better management of equipment so it can be reused or recycled. (39)* | 2.48 | |
Incorporate shared ride service for those with disabilities. (5) | 2.43 | |
Develop resources to help with applications for independent living programmes. (19) | 2.35 | |
Coordinated funding and services | 2.07 | |
Develop a coordinated approach by all ministries and agencies involved in Community Living B.C. (63)* | 2.52 | |
Develop a broader definition of palliative approach to care that includes dedicated funding. (26)* | 2.39 | |
Provide advocates to help those with palliative conditions access programmes/funding. (46)* | 2.39 | |
Revise the conditions of Registered Disability Savings Plan to ensure timely availability. (30) | 2.30 | |
Allow income exemptions for person with disabilities to receive Student Aid BC, loans and grants. (58) | 2.13 |
The number in brackets represents the original statement number on the cluster map.
*Statements most important for YAs (compared with parents and health and community providers).
YA, young adult.