Groups either initiating conversations about advance care plans and recognising a person with MS or PD was dying compared with controls
| Community n (%) | Family n (%) | GP or GP and family n (%) | Hospital n (%) | Nursing home n (%) | Hospice n (%) | Patient n (%) | |
| Advance care planning | |||||||
| Control population (n=44) | 3 (6.8) | 3 (6.8) | 17 (38.6) | 4 (9.1) | – | – | 17 (38.6) |
| Parkinson’s disease (n=67) | 4 (6.0) | 5 (7.5) | 44 (65.7) | 9 (13.4) | 3 (4.5) | – | 2 (3.0) |
| Multiple sclerosis (n=65) | 4 (6.2) | 6 (9.2) | 32 (49.2) | 7 (10.8) | 1 (1.5) | 3 (4.6) | 12 (18.5) |
| Recognition of dying | |||||||
| Control population (n=45) | 10 (22.2) | 2 (4.4) | 24 (53.3) | 6 (13.3) | – | 3 (6.7) | – |
| Parkinson’s disease (n=62) | 7 (11.3) | – | 38 (61.3) | 9 (14.5) | 8 (12.9) | – | – |
| Multiple sclerosis (n=53) | 1 (1.9) | 2 (3.8) | 34 (64.2) | 7 (13.2) | 6 (11.3) | 3 (5.7) | – |
GP, general practitioner; MS, multiple sclerosis; PD, Parkinson's disease.