Burden of disease participants’ status in the six focus groups
| Mild Disease | Intermediate Spinal | Intermediate Bulbar | Severe Disease | |
| Number of patients in each focus group | Focus #1: 8 | Focus #3: 3 | ||
| Total 11 | 8 | 3 | 0 | 0 |
| Number of carer in each focus group | Focus #2: 12 | Focus #4: 5 | Focus #5: 4 | Focus #6: 12 |
| Total 33 | 12 | 5 | 4 | 12 |