Assessment scales | Baseline | Review* |
PAINAD | ||
Mean (SD) | 1.6 (2.1) | 0.9 (1.6) |
Median (IQR) | 0 (0–3) | 0 (0–1)† |
MNA | ||
Mean (SD) | 4.2 (2.8) | 6.0 (2.7) |
Median (IQR) | 4 (2–6) | 6 (4–8)‡ |
NPI-Q severity | ||
Mean (SD) | 4.6 (4.3) | 2.2 (2.9) |
Median (IQR) | 3 (1–9) | 1 (0–3)§ |
NPI-Q caregiver distress | ||
Mean (SD) | 3.6 (4.9) | 1.8 (3.6) |
Median (IQR) | 1 (0–6) | 0 (0–2)† |
Total QUALID score | ||
Mean (SD) | 24.4 (7.2) | 20.3 (6.3) |
Median (IQR) | 23 (19–30) | 19 (15–24)‡ |
QUALID tension subscale | ||
Mean (SD) | 6.8 (3.3) | 5.6 (2.5) |
Median (IQR) | 6 (4–9) | 4 (4–7)† |
QUALID sadness subscale | ||
Mean (SD) | 4.9 (2.5) | 4.3 (2.3) |
Median (IQR) | 4 (3–6) | 3 (3–5)¶ |
QUALID well-being subscale | ||
Mean (SD) | 12.6 (4.1) | 10.5 (3.8) |
Median (IQR) | 13 (10–16) | 11 (8–13)§ |
*Review assessments administered within a year were included in the analyses.
†P<0.05.
‡P=0.001.
§P vlaue <0.0001.
¶P=0.078.
MNA, Mini Nutritional Assessment (range: 0–14, higher score indicates better nutritional status); NPI-Q Caregiver Distress, Neuropsychiatric Inventory Questionnaire caregiver distress domain (range: 0–60, higher score indicates greater caregiver distress); NPI-Q Severity, Neuropsychiatric Inventory Questionnaire severity domain (range: 0–36, higher score indicates greater severity); PAINAD, Pain Assessment in Advanced Dementia (range: 0–10, higher score indicates greater severity); QUALID, Quality of life in late-stage dementia (range: 11–55, lower score indicates better quality of life); QUALID sadness subscale consists of 3 items (range: 3–15); QUALID tension subscale consists of 4 items (range: 4–20); QUALID well-being subscale consists of 4 items (range: 4–20).