Percentage of patients with different components of the KIS completed at death, and if so when discussed, according to illness trajectory
| Cancer n=212 | Dementia/frailty n=189 | Organ failure n=204 | Total N=605 | |
|---|---|---|---|---|
| KIS started before death, n (%) | 158 (74) | 125 (66) | 83 (41) | 366 (60) |
| Weeks KIS started prior to death, median (IQR) | 14 (6–27) | 20 (8–34) | 22 (10–31) | 18 (7–31) |
| ACP started prior to death, n (%) | 154 (73) | 120 (63) | 76 (37) | 350 (58) |
| Weeks ACP started prior to death, median (IQR) | 11 (5–24) | 18 (7–34) | 20 (5–30) | 15 (5–29) |
| PCS started, n (%) | 132 (62) | 66 (35) | 44 (22) | 242 (40) |
| Weeks PCS started prior to death, median (IQR) | 9 (4–22) | 10 (2–20) | 16 (5–29) | 11 (4–24) |
| DNACPR form complete, n (%) | 113 (53) | 88 (47) | 51 (25) | 252 (42) |
| Weeks DNACPR completed prior to death, median (IQR) | 5 (2–16) | 17 (5–35) | 12 (4–25) | 10 (3–24) |
| Preferred place care recorded, n (%) | 108 (51) | 79 (42) | 46 (23) | 233 (39) |
| Weeks preferred place of care complete prior to death, median (IQR) | 6 (2–15) | 18 (2–34) | 20 (7–30) | 9 (3–25) |
| Preferred place of final care recorded, n (%) | 88 (42) | 48 (25) | 37 (18) | 173 (29) |
| Weeks preferred place of final care completed prior to death, median (IQR) | 6 (2–17) | 18 (2–35) | 12 (2–27) | 9 (2–24) |
| Anticipatory medication started prior to death, n (%) | 82 (39) | 33 (17) | 24 (12) | 139 (23) |
| Weeks anticipatory medication started prior to death, median (IQR) | 3 (1–9) | 1 (1–2) | 3 (1–16) | 2 (1–6) |
| Place of death, n (%)* | ||||
| Hospital | 88 (42) | 80 (42) | 133 (66) | 301 (50) |
| Home | 62 (29) | 24 (13) | 42 (21 | 128 (21) |
| Care home | 22 (10) | 83 (44) | 21 (10) | 126 (21) |
| Hospice | 40 (19) | 2 (1) | 7 (3) | 49 (8) |
*One patient with organ failure died abroad.
DNACPR, Do Not Attempt Cardiopulmonary Resuscitation; KIS, Key Information Summary; PCS, Palliative Care Summary.