Table 2

Median score and Wilcoxon signed-rank (p value) for patient (n=50) and ICG (n=50) for each POS and POS-S item

POS itemPatient median (minimum, Q1, Q3, maximum)ICG median (minimum, Q1, Q3, maximum)Wilcoxon signed-rank (p value)
Pain1 (0,0,2,4)1 (0,0,2,4)0.622
Breathlessness1 (0,0,2,4)1 (0,0,2,4)0.811
Weakness2 (0,1,3,4)3 (0,2,3,4)0.001**
Nausea0 (0,0,2,3)1 (0,0,2,4)0.305
Vomiting0 (0,0,1,3)0 (0,0,2,3)0.875
Appetite2 (0,0,3,4)2 (0,1,3,4)0.087
Constipation1 (0,0,2,4)1(0,0,2,4)0.182
Mouth problems0 (0,1,2,4)1 (0,0,2,4)0.127
Drowsiness2 (0,1,2,4)2 (0,1,3,4)0.003**
Immobility2 (0,0,3,4)2.5 (0,2,3,4)0.001**
Anxious/worried1.5 (0,0,3,4)2 (0,1,3,4)0.128
Family/friends anxious/worried3 (0,2,3,4)3 (0,2,3,4)0.962
Standard of help to relatives2 (0,1,4,4)2 (0,1,4,4)0.199
Information given0 (0,0,2,4)1 (0,0,2,4)0.237
Standard of facilities2 (0,2,3,4)2 (0,2,3,4)0.582
Share feelings1 (0,0,2,4)1 (0,0,2,4)0.907
Depression1 (0,0,3,4)2 (0,1,3,4)0.199
Time spent by staff2 (0,1,2,4)2 (0,1,3,4)0.034*
Felt good about self2 (0,0,3,4)3 (0,2,4,4)0.0001***
Time wasted on appointments0 (0,0,0,2)0 (0,0,0,4)0.125
Personal issues2 (0,0,4,4)2 (0,0,2,4)0.875
  • POS is a Likert scale, and items are scored from 0 (not at all) to 4 (overwhelmingly).

  • Significant difference between patient-ratings and informal caregiver (ICG) ratings is labelled as follows:¬†*p<0.05; **p<0.01; ***p<0.001.

  • ICG, informal caregiver; POS, palliative outcome scale; POS-S, POS-symptoms.