Table 3

Patient self-report of symptoms and physical functioning

N=1698
VariablesMeanSDMissingN
0–3
%
0–3
N
4–6
%
4–6
N
7–10
%
7–10
Pain*2.12.3141246(74)308(18)141(8)
Tiredness*4.33.013654(41)541(32)450(27)
Nausea*1.02.1211471(88)138(8)68(4)
Depression*2.52.9171144(68)318(19)219(13)
Anxiety*2.32.8181183(70)315(19)192(11)
Drowsiness*3.12.931994(60)396(23)277(16)
Appetite*3.03.2231322(78)240(14)128(8)
Well-being*3.62.735837(50)552(33)274(17)
Shortness of breath*1.82.5141320(78)238(14)26(8)
Pain intensity, average past 24 hours†3.22.79991(59)449(26)249(15)
Pain intensity, worst, past 24 hours†4.03.321796(47)418(25)463(27)
Physical functioning‡64.329.214
N yes % yes
PHQ9 depression§339(20)28
 Anhedonia553(32)33
 Depressed mood437(26)30
Neuropathic pain¶560(34)65
Breakthrough pain last 24 hours**608(37)44
  • *ESAS-r: 0–10 scale, higher score implies higher symptom intensity/poorer well-being, ‘right now’.19

  • †BPI: 0–10 scale, higher score implies higher pain intensity.15

  • ‡QLQ-C15-PAL: 0–100 scale, higher score implies better functioning.20

  • §PHQ9: ‘yes’ indicates a score of 2 or 3 on the 0–3 scale assessing the frequency at which people have been bothered by anhedonia (little interest or pleasure in doing things) and depressed mood during the past 2 weeks: 2=‘more than half the days’ and 3=‘nearly every day’.18

  • ¶‘Does the skin in the painful area feel different from normal, more numb or more sensitive?’: yes/no, adapted from PainDetect.16

  • **‘Have you had flare-ups of breakthrough pain in the last 24 hours?’: yes/no, adapted from the Alberta Breakthrough Pain Assessment Tool.17