Total respondents* (n=204) | Patients (n=104) | Family members (n=95) | |
---|---|---|---|
a. Know enough about patient’s health situation | |||
Yes | 162 (79.4%) | 87 (79.8%) | 75 (78.9%) |
No | 35 (17.2%) | 20 (18.3%) | 15 (15.8%) |
Missing/declined | 7 (3.4%) | 2 (1.8%) | 5 (5.3%) |
b. Know enough about patient’s expected recovery | |||
Yes | 136 (66.7%) | 78 (71.6%) | 58 (61.1%) |
No | 58 (28.4%) | 27 (24.8%) | 31 (32.6%) |
Missing/declined | 10 (4.9%) | 4 (3.7%) | 6 (6.3%) |
c. Know which treatment options are available | |||
Yes | 127 (62.3%) | 73 (67.0%) | 54 (56.8%) |
No | 68 (33.3%) | 33 (30.3%) | 35 (36.8%) |
Missing/declined | 9 (4.4%) | 3 (2.8%) | 6 (6.3%) |
d. Know the benefits and side effects of each option | |||
Yes | 118 (57.8%) | 68 (62.4%) | 50 (52.6%) |
No | 77 (37.7%) | 38 (34.9%) | 39 (41.1%) |
Missing/declined | 9 (4.4%) | 3 (2.8%) | 6 (6.3%) |
e. Is choosing without pressure from others | |||
Yes | 176 (86.3%) | 98 (89.9%) | 78 (82.1%) |
No | 20 (9.8%) | 7 (6.4%) | 13 (13.7%) |
Missing/declined | 8 (3.9%) | 4 (3.7%) | 4 (4.2%) |
f. Have enough support and advice from others to make a choice | |||
Yes | 170 (83.3%) | 95 (87.2%) | 75 (78.9%) |
No | 22 (10.8%) | 9 (8.3%) | 13 (13.7%) |
Missing/declined | 12 (5.9%) | 5 (4.6%) | 7 (7.4%) |
g. Feel sure they have made the best treatment decision | |||
Yes | 174 (85.3%) | 95 (87.2%) | 79 (83.2%) |
No | 15 (7.4%) | 7 (6.4%) | 8 (8.4%) |
Missing/declined | 15 (7.4%) | 7 (6.4%) | 8 (8.4%) |
Decision conflict score of <7 | 128 (57.1%) | 68 (55.7%) | 60 (58.8%) |
Decision conflict score* | 5.3±1.9 (224) | 5.6±1.7 (122) | 5.0±2.1 (102) |
7=no decisional conflict (decisionally ready); 0=maximal decisional conflict (not ready). The score ranged from 0 to 7 and is reported as mean±sd (n).
*Among all the respondents who acknowledged a decision had been made in their care. Decision conflict score is a sum of all the 7 variables that are presented above.