Table 1

Search strategy

Search lineTerm
1exp Palliative Care/
2exp Terminal Care/
3exp Terminally Ill/
4exp long-term care/
5exp uncompensated care/
6exp patient-centered care/
7palliat*.mp.
8terminal care.mp.
9uncompensated care.mp.
10nformal care.mp.
11end of life care.mp.
12end of life care.mp.
13disease/ or disease.mp.
14iIllness.mp.
15cancer*.mp.
16malignan*.mp.
17non malignant.mp.
18advanced.mp.
19(advanced adj3 disease).mp.
20end stage.mp.
21progressive.mp.
22terminal.mp.
23or/1–12
24or/13–17
25or/18–22
2624 and 25
2723 and 26
28caregivers.mp. or exp caregivers/
29informal caregiver.mp.
30exp family/ or family.mp.
31spouse.mp. or spouses/
32relative*.mp.
33carer*.mp.
34informal carer*.mp.
35home care*.mp.
36or/28–35
37exp qualitative research/
38health care surveys/or interviews as topic/or focus groups/or questionnaires/or self-report/ or multicenter studies as topic/or feasibility studies/or pilot projects/
39exp attitude to health/ or exp attitude/ or exp attitude to death/
40attitud*.mp.
41exp “Delivery of Health Care”/
42exp Patient Care Planning/
43patient preference.mp. or exp patient preference/ or exp “Patient Acceptance of Health Care”/
44caregiver preference*.mp.
45carer preference*.mp.
46caregiver perception*.mp.
47carer perception*.mp.
48perception*.mp.
49place of death.mp.
50place of care.mp.
51location of death.mp.
52location of care.mp.
53experiences of carer*.mp.
5437 or 38
55or/39–53
5654 and 55
5727 and 36 and 56
58limit 57 to (“all adult (19 plus years)” or “young adult (19 to 24 years)” or “adult (19 to 44 years)” or “young adult and adult (19–24 and 19–44)” or “middle age (45 to 64 years)” or “middle aged (45 plus years)” or “all aged (65 and over)” or “aged (80 and over)”)
59exp qualitative research/ or qualitative.mp.
6058 and 59
  • The same search terms were used across all databases. Displayed is the search strategy using the OVID search strategy format with limit keywords specific to the OVID databases (MEDLINE, PsycINFO, EMBASE and AMED).