Table 1

Summary of domains and prevalence ranges for subcategories of unmet needs

Domains and subcategories of unmet needsPrevalence ranges
Comprehensive cancer care
 Be told about the help healthcare professionals can offer12.4%–77%20, 29, 32, 33, 36, 38, 40, 41, 47
 Have a supportive relationship with healthcare professionals4.5%–96%16, 17, 19, 20, 23, 29, 32, 33, 36, 38, 40, 41, 47
 Access to health services10%–65%16–20, 22, 28, 30, 31, 36, 45, 46
 Have possibilities to participate or help in patient's care1.1%–86%14, 16, 17, 19, 20, 22, 23, 28–30, 32, 33, 36–38, 40, 41, 47
 Information provided by healthcare professionals was appropriate1.1%–51%17, 19, 20, 22, 28–30, 32, 33, 36, 40, 41, 47
 Obtain the best possible care for patient2.2%–42.4%14, 17, 22, 23, 28–30, 32, 33, 40, 41, 46, 47
 Co-ordination and continuity of care5.3%–22%17, 18, 22, 28, 30, 31
Emotional and psychological
 Help dealing with own emotional distress (eg, anger, guilt, sadness, anxiety, depression)5.8%–93.2%16, 17, 19, 20, 23, 46
 Get emotional support for self/have someone to talk to3%–83.1%17, 19, 20, 22, 28, 30, 31, 46
 Know how to provide emotional support to patient or others3.4%–59%14, 16, 17, 19, 20, 22, 23, 28, 30, 31, 33, 37, 40, 45
 Manage fears about the situation getting worse5.5%–51.2%14, 16, 17, 22, 28, 30, 31, 45
 Find meaning (self or partner)4.6%–24.3%19, 20, 23
Partner or caregiver impact and daily activities
 Financial support, including life and/or travel insurance4.7%–79%17, 22, 28, 30, 31, 36, 46
 Know how to maintain sense of control24%–66.1%19, 20, 46
 Deal with uncertainty and life after cancer3.4%–44.1%14, 16, 17, 19, 20, 22, 28, 30, 31, 45, 46
 Curtail impact on lifestyle and schedule4.6%–59.3%16, 19, 20, 23, 46
 Deal with impact on work2.8%–39.1%14, 17, 23, 28, 45
 Help looking after own health4.5%–54%14, 17, 19, 20, 28, 29, 32, 33, 40, 41, 46, 47
 Assistance with patient daily needs (eg, preparing meals, transportation, hygiene) and illness management tasks3.1%–42.8%18–23, 28, 30, 37, 46
 Balance own needs with caregiving7.6%–34.8%14, 17, 23
 Support dealing with changes in identity26%–32%19, 20)
 Help from others to manage caregiving roles3.6%–37.3%19, 20, 23, 28, 30, 46
Relationship
 Help communicating with patient about illness and his/her concerns7%–47%23, 33, 40, 46
 Have an intimate relationship with the patient and consideration for sexual need7.2%–58%17, 19, 20, 22, 23, 28, 30, 33, 40
 Help communicating with others (eg, family, friends)4%–43.1%22, 28, 33, 40, 46
 Have a satisfactory relationships with others5.4%–25.2%17, 22, 23, 28, 30, 31
 Deal with changes in relationship with partner3.7%–23.2%17, 22, 23, 28, 30, 31
Information
 Knowing what to expect12.4%–76.6%19, 20, 29, 32, 33, 37, 40, 41, 46, 47
 The illness and treatment (eg, diagnosis, prognosis, treatment)2.2%–86%14, 16, 17, 19, 20, 23, 29, 32, 33, 36–38, 40, 41, 45–47
 Death and dying11.9%–67.8%36, 46
 Providing care to patient2.3%–62%16, 17, 19, 20, 28–33, 37, 40, 41, 45–47
Spirituality
 Feel there is hope for the future6.7%–43%18–20, 29, 32, 33, 40, 41, 47
 Receive spiritual support2%–11%19, 20, 22, 28