Summary of domains and prevalence ranges for subcategories of unmet needs
| Domains and subcategories of unmet needs | Prevalence ranges |
|---|---|
| Comprehensive cancer care | |
| Be told about the help healthcare professionals can offer | 12.4%–77%20, 29, 32, 33, 36, 38, 40, 41, 47 |
| Have a supportive relationship with healthcare professionals | 4.5%–96%16, 17, 19, 20, 23, 29, 32, 33, 36, 38, 40, 41, 47 |
| Access to health services | 10%–65%16–20, 22, 28, 30, 31, 36, 45, 46 |
| Have possibilities to participate or help in patient's care | 1.1%–86%14, 16, 17, 19, 20, 22, 23, 28–30, 32, 33, 36–38, 40, 41, 47 |
| Information provided by healthcare professionals was appropriate | 1.1%–51%17, 19, 20, 22, 28–30, 32, 33, 36, 40, 41, 47 |
| Obtain the best possible care for patient | 2.2%–42.4%14, 17, 22, 23, 28–30, 32, 33, 40, 41, 46, 47 |
| Co-ordination and continuity of care | 5.3%–22%17, 18, 22, 28, 30, 31 |
| Emotional and psychological | |
| Help dealing with own emotional distress (eg, anger, guilt, sadness, anxiety, depression) | 5.8%–93.2%16, 17, 19, 20, 23, 46 |
| Get emotional support for self/have someone to talk to | 3%–83.1%17, 19, 20, 22, 28, 30, 31, 46 |
| Know how to provide emotional support to patient or others | 3.4%–59%14, 16, 17, 19, 20, 22, 23, 28, 30, 31, 33, 37, 40, 45 |
| Manage fears about the situation getting worse | 5.5%–51.2%14, 16, 17, 22, 28, 30, 31, 45 |
| Find meaning (self or partner) | 4.6%–24.3%19, 20, 23 |
| Partner or caregiver impact and daily activities | |
| Financial support, including life and/or travel insurance | 4.7%–79%17, 22, 28, 30, 31, 36, 46 |
| Know how to maintain sense of control | 24%–66.1%19, 20, 46 |
| Deal with uncertainty and life after cancer | 3.4%–44.1%14, 16, 17, 19, 20, 22, 28, 30, 31, 45, 46 |
| Curtail impact on lifestyle and schedule | 4.6%–59.3%16, 19, 20, 23, 46 |
| Deal with impact on work | 2.8%–39.1%14, 17, 23, 28, 45 |
| Help looking after own health | 4.5%–54%14, 17, 19, 20, 28, 29, 32, 33, 40, 41, 46, 47 |
| Assistance with patient daily needs (eg, preparing meals, transportation, hygiene) and illness management tasks | 3.1%–42.8%18–23, 28, 30, 37, 46 |
| Balance own needs with caregiving | 7.6%–34.8%14, 17, 23 |
| Support dealing with changes in identity | 26%–32%19, 20) |
| Help from others to manage caregiving roles | 3.6%–37.3%19, 20, 23, 28, 30, 46 |
| Relationship | |
| Help communicating with patient about illness and his/her concerns | 7%–47%23, 33, 40, 46 |
| Have an intimate relationship with the patient and consideration for sexual need | 7.2%–58%17, 19, 20, 22, 23, 28, 30, 33, 40 |
| Help communicating with others (eg, family, friends) | 4%–43.1%22, 28, 33, 40, 46 |
| Have a satisfactory relationships with others | 5.4%–25.2%17, 22, 23, 28, 30, 31 |
| Deal with changes in relationship with partner | 3.7%–23.2%17, 22, 23, 28, 30, 31 |
| Information | |
| Knowing what to expect | 12.4%–76.6%19, 20, 29, 32, 33, 37, 40, 41, 46, 47 |
| The illness and treatment (eg, diagnosis, prognosis, treatment) | 2.2%–86%14, 16, 17, 19, 20, 23, 29, 32, 33, 36–38, 40, 41, 45–47 |
| Death and dying | 11.9%–67.8%36, 46 |
| Providing care to patient | 2.3%–62%16, 17, 19, 20, 28–33, 37, 40, 41, 45–47 |
| Spirituality | |
| Feel there is hope for the future | 6.7%–43%18–20, 29, 32, 33, 40, 41, 47 |
| Receive spiritual support | 2%–11%19, 20, 22, 28 |