The characteristics of the participants
| Participants (n=5) | |
|---|---|
| Gender | |
| Male | 4 |
| Female | 1 |
| Age | |
| Mean | 59 years |
| Range | 51–75 years |
| Illness duration | |
| Median | 29 months |
| Range | 23–237 months |
| Onset type | |
| Bulbar | 3 |
| Limb | 2 |
| Nocturnal pulse oximetry time spent <90% | |
| <30 min | 1 |
| 31–60 min | 2 |
| >61 min | 2 |
| Range | 26 min–7 h 25 min |
| Months with NIV | |
| Mean | 13 months |
| Range | 12–14 months |
| Relationship to caregiver | |
| Spouse/partner | 3 |
| Friend | 1 |
| Sibling | 1 |
| Caregiver sex | |
| Male | 1 |
| Female | 4 |
NIV, non-invasive ventilation.