Table 4

Quality indicators for palliative care as described in national guidelines for breast, colorectal and prostate cancer care (including overall indicators for cancer care),11 national guidelines for lung cancer care18 and national quality indicators, and ‘Care and nursing of the elderly’20

Specific indicators for palliative care (translated verbatim)Found in national guidelines/national quality indicatorsMeasure referred to numerator/denominatorQuality area referred to
Age normalised incidence of palliative radiation therapy for skeletal metastases in prostate cancerProstate cancer careProcess measurePatient focused health and medical care
Palliative radiation therapy for incurable lung cancerLung cancer careProcess measure Numerator and denominator describedEquitable care
Palliative chemotherapy for lung cancerLung cancer careProcess measure Numerator and denominator describedEquitable care
Stent in case of vena cava superior syndromeLung cancer careProcess measureEquitable care
General indicators for palliative care
 Guidelines and procedures used for end of life care and nursing that describe, among other things, how informed counselling can be offered to terminally ill people aged 65 years and olderCare and nursing of the elderlyNot specifiedPatient focused health and medical care
 Fraction of people aged 65 years and older who have died, for whom pain was estimated with the aid of a scientifically evaluated instrument such as an NRS or a VAS, during the final week of lifeCare and nursing of the elderlyNot specified Numerator and denominator describedPatient focused health and medical care
 Fraction of relatives offered counselling for survivorsCare and nursing of the elderlyNot specified Numerator and denominator describedPatient focused health and medical care
 Use of an NRS (1–10) for pain estimation during the palliative phaseOverall indicators for cancer care Breast, colorectal and prostate cancer care Lung cancer careStructure and process measure Numerator and denominator describedKnowledge based health and medical care that is fit for purpose
 Registration of deaths in Swedish Register of Palliative CareOverall indicators for cancer care Breast, colorectal and prostate cancer care Lung cancer careProcess measure Numerator and denominator describedKnowledge based health and medical care that is fit for purpose
 Prescription of opioid administered parenterally as required, for pain relief during end of life careOverall indicators for cancer care Breast, colorectal and prostate cancer care Lung cancer careProcess measure Numerator and denominator describedSafe health and medical care, and patient focused health and medical care
 Documentation of the patient's transition to the palliative phase (development indicator)Lung cancer careProcess measurePatient focused health and medical care
  • NRS, numeric rating scale; VAS, visual analogue scale.