Ten highest ‘need for improvement’ scores with corresponding scores for experience items and importance items
| Item | Need for improvement score | % Negative scores for experience item | Mean score for importance item |
|---|---|---|---|
| Support when feeling depressed | 1.397 | 45.95 | 3.04 |
| Support when feeling anxious | 1.354 | 41.67 | 3.25 |
| Support when having shortness of breath | 1.324 | 39.39 | 3.36 |
| Support when constipated | 1.145 | 34.69 | 3.30 |
| Information about the advantages and disadvantages of various types of treatment | 1.031 | 29.63 | 3.48 |
| Information about life expectancy* | 0.978 | 36.21 | 2.70 |
| Support when in pain | 0.924 | 26.32 | 3.51 |
| Support when feeling tired | 0.916 | 29.63 | 3.09 |
| Help with physical care | 0.486 | 15.00 | 3.24 |
| Information about who is the contact person for questions about the treatment | 0.433 | 12.35 | 3.51 |
*In the revised version of the CQ-index PC, the ‘Information about life expectancy’ item was reformulated as ‘Information about the expected course of the illness’ because some patients found the initial question too ‘crude’.
CQ-index PC, Consumer Quality Index Palliative Care.