Participants’ occupations
| Profession | Round 1 | Round 2 | Round 3 |
|---|---|---|---|
| N | N | N | |
| Clinical psychologist | 1 | 1 | 0 |
| Consultant in palliative medicine (paediatric) | 3 | 4 | 2 |
| Consultant in palliative medicine (adults) | 2 | 6 | 3 |
| Consultant neurologist/neurorehabilitation (paediatric) | 3 | 2 | 0 |
| Director of service | 6 | 2 | 1 |
| General paediatrician | 1 | 0 | 0 |
| Government | 1 | 0 | 0 |
| Head of care | 0 | 2 | 2 |
| Manager of clinical service (any) | 3 | 4 | 2 |
| Neuromuscular care advisor | 1 | 1 | 0 |
| Nursing | 12 | 17 | 10 |
| Occupational therapist | 1 | 1 | 0 |
| Physiotherapist | 3 | 2 | 1 |
| Researcher | 1 | 1 | 1 |
| Social worker | 2 | 5 | 2 |
| Transition manager/careers coordinator | 3 | 3 | 2 |
| Other | 1 | 17 | 0 |
| Missing | 1 | 0 | 0 |