TableĀ 1

electronic Patient-reported Outcomes from Cancer Survivors (ePOCS) research nurse feedback: top 10 Pros and Cons

  1. The research nurses found ePOCS an interesting study.

  2. ePOCS research nurses were the experts in the study at multidisciplinary team meeting.

  3. Broad eligibility criteria meant large numbers of patients could be approached and recruited.

  4. Recruitment criteria allowed a varied time of approach postdiagnosis.

  5. ePOCS required no additional hospital visits.

  6. Research nurses found ePOCS easier to explain to patients than clinical trials of investigational medicinal products.

  7. The ePOCS study was easy for patients to understand.

  8. Patients were interested in ePOCS

  9. It was easy for patients to make a decision about joining ePOCS.

  10. Immediate patient consent was allowed.

  1. The ePOCS research nurses had to put in a lot of effort to get doctors on board.

  2. As there was a broad eligibility criteria and there were many clinics to cover.

  3. The ePOCS study was not a high priority in clinics.

  4. Usually doctors needed reminding to mention to patients about the ePOCS study.

  5. Cover for ePOCS research nurse absence was a problem.

  6. ePOCS research nurses found it hard to support other portfolio studies as their time was taken up with ePOCS.

  7. Obtaining patient notes to file ePOCS consent forms was an issue.

  8. No follow-up with patients was a downside.

  9. Being involved in ePOCS only could become dissatisfying over time.

  10. As with other studies, ePOCS research nurses felt under pressure to recruit which was not so good when recruitment is not going well.