Content items
| Item | Round 2 | Round 3 | Include in education/ training package? | ||||
|---|---|---|---|---|---|---|---|
| Mean | Median | IQR | Mean | Median | IQR | ||
| Clinical topics | |||||||
| Conditions faced by young people/disease processes (including management and treatment) | 4.57 | 5 | 1 | – | – | – | Agree R2: 92.5% (n=62) |
| Complex needs | 4.69 | 5 | 1 | – | – | – | Agree R2: 98.5% (n=66) |
| End-of-life care | 4.57 | 5 | 1 | – | – | – | Agree R2: 95.5% (n=64) |
| Advance care planning and decision making | 4.63 | 5 | 1 | – | – | – | Agree R2: 94.0% (n=63) |
| Resuscitation issues | 4.40 | 5 | 1 | – | – | – | Agree R2: 88.1% (n=59) |
| Tracheostomy care | 4.10 | 4 | 1 | – | – | – | Agree R2: 79.1% (n=53) |
| Ventilation | 4.10 | 4 | 1 | – | – | – | Agree R2: 77.6% (n=52) |
| Cough assists | 4.09 | 4 | 1 | – | – | – | Agree R2: 76.1% (n=51) |
| Enteral feeding/gastrostomy/jejunostomy | 4.21 | 4 | 1 | – | – | – | Agree R2: 83.6% (n=56) |
| Pain assessment | 4.45 | 5 | 1 | – | – | – | Agree R2: 86.6% (n=58) |
| Aspiration | 4.13 | 4 | 1 | – | – | – | Agree R2: 79.1% (n=53) |
| Chest physiotherapy | 3.90 | 4 | 2 | 4.09 | 4 | 1 | Agree R2: 67.2% (n=45) R3: 82.9% (n=29) |
| Constipation | 4.03 | 4 | 2 | 4.40 | 4 | 1 | Agree R2: 73.1% (n=49) R3: 94.3% (n=33) |
| Continence management | 4.04 | 4 | 1 | – | – | – | Agree R2: 77.6% (n=52) |
| Spasticity and dystonias | 4.28 | 4 | 1 | – | – | – | Agree R2: 86.6% (n=58) |
| Seizure management | 4.25 | 4 | 1 | – | – | – | Agree R2: 83.6% (n=56) |
| Sleep disorders | 4.09 | 4 | 1 | – | – | – | Agree R2: 79.1% (n=53) |
| Risk assessing | 4.24 | 4 | 1 | – | – | – | Agree R2: 85.1% (n=57) |
| Medication | 4.31 | 4 | 1 | – | – | – | Agree R2: 88.1% (n=59) |
| Psychosocial topics | |||||||
| Social and medical models of disability | 4.23 | 4 | 1 | – | – | – | Agree R2: 81.8% (n=54) |
| Communication and counselling/listening skills | 4.59 | 5 | 1 | – | – | – | Agree R2: 87.9% (n=58) |
| Psychosocial needs of young people | 4.74 | 5 | 0 | – | – | – | Agree R2: 97.0% (n=64) |
| Sexuality and disability | 4.61 | 5 | 1 | – | – | – | Agree R2: 92.4% (n=61) |
| Challenging behaviours and their management | 4.45 | 5 | 1 | – | – | – | AgreeR2: 93.9% (n=62) |
| Anticipatory grief and bereavement of disability | 4.47 | 5 | 1 | – | – | – | Agree R2: 92.4% (n=61) |
| Impact on families/support | 4.61 | 5 | 1 | – | – | – | Agree R2: 95.5% (n=63) |
| Working with parents | 4.68 | 5 | 1 | – | – | – | Agree R2: 100% (n=66) |
| Death and dying | 4.36 | 4.5 | 1 | – | – | – | Agree R2: 87.9% (n=58) |
| Bereavement | 4.29 | 4 | 1 | – | – | – | Agree R2: 84.8% (n=56) |
| Boundary setting | 4.39 | 5 | 1 | – | – | – | Agree R2: 87.9% (n=58) |
| Practical topics | |||||||
| How a young adult hospice differs to a children's hospice | 4.49 | 5 | 1 | – | – | – | Agree R2: 92.3% (n=60) |
| Personal and intimate care | 4.23 | 4 | 1 | – | – | – | Agree R2: 83.1% (n=54) |
| Environment | 4.14 | 4 | 1 | – | – | – | Agree R2: 83.1% (n=54) |
| Ethics, decision making and consent | 4.63 | 5 | 1 | – | – | – | Agree R2: 96.9% (n=63) |
| Safeguarding and protection of vulnerable adults training | 4.66 | 5 | 1 | – | – | – | Agree R2: 93.8% (n=61) |
| Referral to appropriate services | 4.42 | 4 | 1 | – | – | – | Agree R2: 95.4% (n=62) |
| Posture management/positioning | 4.23 | 4 | 1 | – | – | – | Agree R2: 84.6% (n=55) |
| Moving and handling including hoists and slings, use of wheelchairs /specialist seating | 4.26 | 4 | 1 | – | – | – | Agree R2: 78.5% (n=51) |
| Pressure area risk assessment | 4.03 | 4 | 2 | 4.31 | 4 | 1 | Agree R2: 73.8% (n=48) R3: 91.4% (n=32) |
| Activities and engagement for those with cognitive difficulties | 4.57 | 5 | 1 | – | – | – | Agree R2: 93.8% (n=61) |
| Bathing equipment | 3.97 | 4 | 2 | 4.00 | 4 | 0 | Agree R2: 70.8% (n=46) R3: 82.9% (n=29) |
| Sleep systems | 4.11 | 4 | 1 | – | – | – | Agree R2: 78.5% (n=51) |
| Equipment and technology, ie, communication systems | 4.32 | 4 | 1 | – | – | – | Agree R2: 87.7% (n=57) |
| Other topics | |||||||
| Data protection | 3.77 | 4 | 1 | 4.03 | 4 | 1 | Agree R2: 63.1% (n=41) R3: 85.7% (n=30) |
| Transition/key worker training | 4.38 | 5 | 1 | – | – | – | Agree R2: 89.2% (n=58) |
| Needs led assessment training | 4.15 | 4 | 1 | – | – | – | Agree 78.5% (n=51) |
| Role of other healthcare providers | 4.09 | 4 | 1 | – | – | – | Agree R2: 80.0% (n=52) |