RT Journal Article
SR Electronic
T1 End-of-life preferences of people with advanced chronic obstructive pulmonary disease
JF BMJ Supportive & Palliative Care
JO BMJ Support Palliat Care
FD British Medical Journal Publishing Group
SP spcare-2024-005067
DO 10.1136/spcare-2024-005067
A1 Mendes, M Aurora
A1 Muijsenberg, Anouk JL
A1 Houben-Wilke, Sarah
A1 Houben, Carmen HM
A1 Spruit, Martijn A
A1 Marques, Alda
A1 Janssen, Daisy J A
YR 2024
UL http://spcare.bmj.com/content/early/2024/09/19/spcare-2024-005067.abstract
AB Objectives To identify end-of-life preferences of people with advanced chronic obstructive pulmonary disease (COPD) and to compare characteristics between those who wish to discuss the end-of-life and those who do not.Methods An analysis of the baseline data of a randomised controlled trial was performed including people with COPD GOLD stages III–IV or former quadrant D with modified Medical Research Council questionnaire grade ≥2, after hospital discharge following an exacerbation. Participants were interviewed using the End-of-Life Preferences Interview.Results A total of 165 individuals (53% men; 68±9 years old; 55% care dependent) were included. Most participants wished to take part in shared decision-making (78%), to be informed about a short life expectancy (82%), to discuss the end-of-life (82%), to have loved ones around at death (87%) and to choose when to die (70%). They also reported accepting opioids (74%). Preferences for who to provide physical care, the place, consciousness and atmosphere at death as well as life-sustaining treatments were heterogeneous. Participants who wanted to discuss the end-of-life had a significantly higher educational level (p=0.030) and worse health status than participants who did not (p=0.007).Conclusions End-of-life preferences of people with advanced COPD were heterogeneous, however, most wished to discuss it, especially those with higher educational level and worse health status.Trial registration number NTR3940.Details regarding the data analysis will be available from the corresponding author on reasonable request. Participants did not provide informed consent to share their data.