TY - JOUR T1 - Advance care planning participation by people with dementia: a cross-sectional survey and medical record audit JF - BMJ Supportive & Palliative Care JO - BMJ Support Palliat Care SP - e464 LP - e468 DO - 10.1136/bmjspcare-2020-002550 VL - 12 IS - e3 AU - Jamie Bryant AU - Marcus Sellars AU - Amy Waller AU - Karen Detering AU - Craig Sinclair AU - Rasa Ruseckaite AU - Ben White AU - Linda Nolte Y1 - 2022/08/01 UR - http://spcare.bmj.com/content/12/e3/e464.abstract N2 - Objectives To describe among individuals with dementia: (1) self-reported awareness of, and engagement in, advance care planning; (2) presence of advance care planning documentation in the health record and (3) concordance between self-reported completion of advance care planning and presence of documentation in the health record.Methods An Australian prospective multicentre audit and cross-sectional survey. Individuals diagnosed with dementia who were able to speak English and were judged by a healthcare provider as having decision-making capacity were recruited from self-selected hospitals, residential aged care facilities and general practices across Australia.Results Fifty-two people with dementia completed surveys and were included. Overall, 59.6% of participants had heard about advance care planning and 55.8% had discussed advance care planning with someone, most often a family member (48.1%). While 38.5% of participants had appointed a medical substitute decision maker, only 26.9% reported that they had written down their values and preferences for future care. Concordance between self-reported completion of advance care planning and presence of documentation in the health record was low (56.8%, κ=0.139; 57.7%, κ=0.053).Conclusion Effective models that promote discussion, documentation and accessible storage of advance care planning documents for people with dementia are needed. ER -