RT Journal Article
SR Electronic
T1 Perinatal palliative care: a dedicated care pathway
JF BMJ Supportive & Palliative Care
JO BMJ Support Palliat Care
FD British Medical Journal Publishing Group
SP 329
OP 334
DO 10.1136/bmjspcare-2019-001849
VO 11
IS 3
A1 Francesca Rusalen
A1 Maria Elena Cavicchiolo
A1 Paola Lago
A1 Sabrina Salvadori
A1 Franca Benini
YR 2021
UL http://spcare.bmj.com/content/11/3/329.abstract
AB Objective Ensure access to perinatal palliative care (PnPC) to all eligible fetuses/infants/parents.Design During 12 meetings in 2016, a multidisciplinary work-group (WG) performed literature review (Grading of Recommendations, Assessment, Development and Evaluation (GRADE) method was applied), including the ethical and legal references, in order to propose shared care pathway.Setting Maternal-Infant Department of Padua’s University Hospital.Patients PnPC eligible population has been divided into three main groups: extremely preterm newborns (first group), newborns with prenatal/postnatal diagnosis of life-limiting and/or life-threatening disease and poor prognosis (second group) and newborns for whom a shift to PnPC is appropriate after the initial intensive care (third group).Interventions The multidisciplinary WG has shared care pathway for these three groups and defined roles and responsibilities.Main outcome measures Prenatal and postnatal management, symptom’s treatment, end-of-life care.Results The best care setting and the best practice for PnPC have been defined, as well as the indications for family support, corpse management and postmortem counselling, as well suggestion for conflicts’ mediation.Conclusions PnPC represents an emerging field within the paediatric palliative care and calls for the development of dedicated shared pathways, in order to ensure accessibility and quality of care to this specific population of newborns.There are no data in this work.