PT  - JOURNAL ARTICLE
AU  - Berry, Mary Judith
AU  - Saito-Benz, Maria
AU  - Klein, Tisha
AU  - Bowkett, Brendon
AU  - Richardson, Vaughan F
TI  - Ectopia cordis: a novel palliative care technique
AID  - 10.1136/bmjspcare-2015-000946
DP  - 2017 Mar 01
TA  - BMJ Supportive & Palliative Care
PG  - 102--104
VI  - 7
IP  - 1
4099  - http://spcare.bmj.com/content/7/1/102.short
4100  - http://spcare.bmj.com/content/7/1/102.full
SO  - BMJ Support Palliat Care2017 Mar 01; 7
AB  - Complete ectopia cordis in the newborn represents a significant management challenge. There are minimal data available to inform optimal clinical care for those infants with coexisting complex congenital heart disease who are therefore not candidates for surgical intervention. The exteriorisation of the heart and absence of the pericardial sac requires meticulous wound care to prevent desiccation of the myocardium and to minimise infection risk. Additionally, the technique selected must address the risk of occlusion of the cardiac vascular pedicle and abrasion between the mobile myocardium and dressing surface. We report a novel approach to wound management and integrated palliative care that enabled community-based care. Our patient, a full-term male infant with complete ectopia cordis was born in good condition by assisted vaginal delivery. He was discharged from hospital on day 8 and was cared for in the community until his demise from cardiac failure on day 15.