Article Text
Abstract
Background End-of-life care among surgical patients is largely understudied and far fewer studies examine such care from the family perspective. To identify potential opportunities for improvement, we explored responses of family members of veterans who died following surgery using the Veterans Affairs (VAs) Bereaved Family Survey (BFS).
Methods We examined data from the BFS open-text responses to explore insights into surgical patient’s end-of-life care. Data were analysed iteratively using qualitative content analysis and clustered into domains based on content.
Results We evaluated 936 open-text responses to the BFS for all decedents who underwent any high-risk surgical procedure across 124 VA medical centres from 2010 to 2019. This report focused on the following domains: patient needs, family/caregiver needs, clinical teams/personnel characteristics and facility/organisational characteristics. Key themes within patient needs included concerns about pain management, preservation of patient dignity and spiritual support. Within the family/caregiver domain, key themes included enhanced communication needs, assistance with logistics and displays of gratitude for the patient’s military service. The clinical team’s domain included the key themes of professionalism concerns and understaffing. Finally, key themes identified within the facility/organisation domain were the need for more robust support services and discomfort with the physical space.
Conclusions Narratives from the family perspective provide valuable insight into end-of-life care among surgical patients. Our data demonstrate the critical need for preserving patient dignity and improved communication, which emphasises family involvement and shared decision-making. In addition, hospital systems can optimise nurse-to-patient ratios and intentionally design physical spaces to help improve end-of-life care for surgical patients.
- Palliative Care
- Advance Care Planning
- Bereavement
- Clinical decisions
- Communication
- End of life care
Data availability statement
No data are available.
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Footnotes
X @emilyelisaevans
Contributors CS, AD and PAS made substantial contributions to the concept or design of the work. CS and PAS are the guarantors. AD was responsible for project management. CS, CAV, EE, SE and SEB participated in the acquisition and/or analysis or interpretation of data. All the authors drafted the article or revised it critically for important intellectual content. All the authors have read and approved the final version of the manuscript and have participated sufficiently in the work to take public responsibility for appropriate portions of the content.
Funding This work was funded by an NIH K08 Grant awarded to PAS: Agency for Healthcare Research and Quality (K08 HS026772). Funding was used to access/purchase of the BFS results data and support of research staff salary.
Competing interests None declared.
Provenance and peer review Not commissioned; externally peer reviewed.