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Healthcare professionals roles in pancreatic cancer care: patient and family views and preferences
  1. Fumika Horinuki1,
  2. Yumiko Saito1,
  3. Chikako Yamaki1,
  4. Yasushi Toh2 and
  5. Tomoko Takayama3
  1. 1 Institute for Cancer Control, National Cancer Center Japan, Chuo-ku, Tokyo, Japan
  2. 2 National Hospital Organization Kyushu Cancer Center, Fukuoka, Japan
  3. 3 Shizuoka Graduate University of Public Health, Shizuoka, Japan
  1. Correspondence to Dr Fumika Horinuki, Institute for Cancer Control, National Cancer Center Japan, Chuo-ku, Tokyo, Japan; fhorinuk{at}ncc.go.jp

Abstract

Objectives This study explored the information needs and requirements of patients with pancreatic cancer (PPCs) and their families through patients’ and families’ views and preferences (PVPs) collected by healthcare professionals (HCPs) and to identify differences in PVPs by profession.

Methods We conducted an anonymous web-based survey of HCPs in cancer care hospitals in Japan, posing specific questions from patients or families regarding pancreatic cancer within the past year. We qualitatively analysed the data and classified them into several categories according to their content. We also compared the percentage of PVPs in each category in the medical profession.

Results We collected 893 PVPs from 353 HCPs and classified them into 15 topics within 5 categories: (1) treatment and care, (2) characteristics of the disease, (3) daily life, (4) feelings of patients or families and (5) communication with HCPs/peer support information. Physicians, nurses and pharmacists received mainly PVPs in categories 1 and 2. Characteristically, cancer counsellors received PVPs in all categories, with higher frequencies for categories 3–5.

Conclusions PPCs and families have diverse PVPs, and appear to select different HCPs for consultation based on their specific concerns. Each HCP should recognise that their individual experience may be insufficient in understanding the full spectrum of PVPs; however, cancer counsellors tend to have a broader awareness of them. To support PPCs and families, HCPs should appropriately collaborate with each other, considering that HCPs like cancer counsellors who do not provide direct treatment still play an important role in providing holistic support.

  • Pancreatic
  • Communication
  • Patient Care Team
  • Supportive care

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Footnotes

  • Contributors TT, YT and CY designed and implemented the study and collected data. FH and YS conducted the analysis. FH wrote the first draft of the manuscript, and all authors read and approved the final manuscript. TT is responsible for the overall content as guarantor.

  • Funding This study was funded by the Health and Labor Sciences Research Grant awarded to Tomoko Takayama toward 'establishing a sustainable system of cancer information and support center system for the future (H29-Cancer Control-005),' 'establishing the quality of cancer counseling and building a sustainable system (R5-Cancer Control- 23EA2401),' and to Fumihiko Wakao toward 'establishing a system for prompt and timely provision of evidence-based cancer information to the public (R2-Cancer Control-20EA1008)'.

  • Competing interests None declared.

  • Provenance and peer review Not commissioned; internally peer reviewed.