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Myotonic dystrophy type 1: palliative care guidelines

Abstract

Palliative care for adults with neuromuscular conditions is an emerging field. Previous guidelines regarding myotonic dystrophy and palliative care have only mentioned end-of-life care and little else. The following guidelines have been written using national experts as a description of best practice as part of the Dystrophia Myotonica National Care Guidelines Consortium.

  • Advance Care Planning
  • Neurological conditions

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