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Neuromuscular diseases and advance care plans: traffic light system
  1. Tracey A Willis1,
  2. Michael Macfarlane2,
  3. Rishwa Vithlani1,
  4. Claire Bassie1,
  5. Richa Kulshrestha1 and
  6. Derek Willis3
  1. 1Paediatrics, Robert Jones and Agnes Hunt Orthopaedic NHS Trust Hospital, Oswestry, Shropshire, UK
  2. 2Medical, Severn Hospice, Shrewsbury, UK
  3. 3Medical, Severn Hospice, Telford, Shropshire, UK
  1. Correspondence to Dr Michael Macfarlane, Severn Hospice, Shrewsbury SY3 8HS, UK; mike.macfarlane{at}nhs.net

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We recently reported preliminary results of a novel joint clinic between an adult specialist palliative care team and a regional adult and paediatric neuromuscular team.1 The neuromuscular team have now developed a ‘traffic light’ tool to identify and prioritise those who might benefit from advance care planning and integration into the joint palliative/neuromuscular clinic described.

In paediatrics, ‘The Spectrum of Children’s Palliative Care Needs’ classification2 helps identify when to introduce advance care planning. Using this, a traffic light system has been developed specifically for neuromuscular patients (figure 1); no other tool currently exists. This categorises patients as ‘red’, …

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Footnotes

  • Contributors TAW, RV, CB and RK were each involved in devising and implementing the traffic light system reported. This paper was written by MM and RV with oversight and input from TW and DW.

  • Funding The authors have not declared a specific grant for this research from any funding agency in the public, commercial or not-for-profit sectors.

  • Competing interests None declared.

  • Patient consent for publication Not required.

  • Provenance and peer review Not commissioned; internally peer reviewed.

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