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Paediatric advance care plans: a cross-sectional survey of healthy young adults
  1. Holly Elaine Evans1,2,3,
  2. Ursula M Sansom-Daly2,3,4 and
  3. Richard Bryant1
  1. 1School of Psychology, University of New South Wales, Randwick, New South Wales, Australia
  2. 2Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children’s Hospital, Randwick, New South Wales, Australia
  3. 3School of Women’s and Children’s Health, UNSW Medicine, University of New South Wales (UNSW), Sydney, New South Wales, Australia
  4. 4Sydney Youth Cancer Service, Sydney Children’s & Prince of Wales Hospitals, Randwick, New South Wales, Australia
  1. Correspondence to Holly Elaine Evans, School of Psychology, University of New South Wales, Randwick, NSW 2031, Australia; holly.evans{at}unsw.edu.au

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We were interested in the recent study outlining the end-of-life preferences and opinions on paediatric advance care planning of adolescents and young adults (AYAs) with HIV/AIDS. We know that end-of-life conversations and conversations around advance care planning for AYAs with serious illnesses including HIV and cancer are particularly important for gold-standard care at end-of-life.1–5 Lyon and colleagues’1 research supports the appropriateness of end-of-life conversations earlier in the disease trajectory. This paper is also a welcome addition in highlighting the importance of AYAs’ individual preferences at end-of-life.

To better understand developmental aspects of how young people approach end-of-life, we recently explored end-of-life communication and care preferences with AYAs with no history of serious illness. There is a lack of clarity in the field around how early to introduce end-of-life topics with seriously ill AYAs. However, AYAs in Lyon and colleagues’1 study were willing to have end-of-life conversations earlier; 78% indicated that it would be appropriate to initiate these conversations early in the disease trajectory. In our recent work, we asked 248 healthy AYAs (66.5% female, mean age 20 years) whether they would want to …

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Footnotes

  • Contributors HEE, UMS-D and RB designed the study and contributed to the manuscript. HEE collected the data.

  • Funding This study was funded by an Australian Government Research Training Program (RTP) Scholarship.

  • Competing interests None declared.

  • Patient consent for publication Not required.

  • Provenance and peer review Not commissioned; internally peer reviewed.