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​Bereavement support effectiveness for parents of infants and children: a systematic review
  1. Tom Ainscough1,
  2. Lorna Fraser1,
  3. Joanna Taylor1,
  4. Bryony Beresford2 and
  5. Alison Booth1
  1. 1 Department of Health Sciences, University of York, York, UK
  2. 2 Social Policy Research Unit, University of York, York, UK
  1. Correspondence to Dr Lorna Fraser, Department of Health Sciences, University of York, York YO10 5DD, UK; lorna.fraser{at}york.ac.uk

Abstract

Objectives This systematic review aims to assess the effectiveness of bereavement support interventions (BSIs) for parents of an infant or a child who has died from a medical condition or in unforeseen circumstances.

Methods A systematic search of MEDLINE, PsycINFO, Embase and CINAHL (1980 to January 2018) was performed to identify studies investigating BSIs for the parents of children who died between the ages of 24 weeks gestation and 30 years. Due to significant clinical and methodological heterogeneity between studies, a narrative synthesis was performed.

Results The database searches returned 24 550 records, with a further 6 identified through other sources. Of these, eight studies, reported in nine papers, met the inclusion criteria. Most studies were conducted in the USA (n=5) and in perinatal/neonatal deaths (n=6). Five of the included studies were randomised controlled trials and three were non-randomised comparative studies. Interventions were delivered to groups, individuals or families. Outcomes of interest were grief, mental health, physical health and ‘others’. There were major concerns over the quality of study methods and reporting. Only three of the nine studies reported a significant difference between experimental and control arm participants in any outcomes, despite a total of 23 outcomes being measured.

Conclusions Poor methodology and reporting of the few studies which have assessed BSIs for parents limit any conclusions on their effectiveness. Agreement on core outcomes and more robust study methodology are required in this neglected area of research.

  • bereavement
  • grief
  • child death
  • neonates
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Footnotes

  • Contributors The idea was conceived by LF, AB and BB. Analyses was undertaken by TA, JT, AB, BB and LF. The final manuscript was approved by all authors.

  • Funding This article presents independent research funded in partnership between the University of York and Martin House Hospice Care for Children and Young People, West Yorkshire, England.

  • Disclaimer The views expressed are those of the author(s) and not necessarily those of either the University of York or Martin House Hospice Care for Children and Young People.

  • Competing interests None declared.

  • Patient consent for publication Not required.

  • Provenance and peer review Not commissioned; externally peer reviewed.

  • Data availability statement All data relevant to the study are included in the article or uploaded as supplementary information.

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