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P-162 Supported self-management in young adults with palliative care needs
  1. Ros Cook and
  2. Philippa Sellar
  1. St Christopher’s Hospice, London, UK


Background Transition is defined as a purposeful and planned process of supporting young people to move from children’s to adults’ services (Together for Short Lives, 2012). The preparation and planning around moving on into adult services can be an uncertain time for young people with health needs. There is evidence of service gaps and young people may fail to engage with services without proper support (NICE, 2016). This leads to greater levels of dependence and isolation, with little opportunity for social situations. Personal autonomy and independence are frustrated.

Aims Supported self-management aims to potentiate a shift towards self-care and personalised care (NHS Long Term Plan, 2019). Evidence suggests that measuring individuals’ activation; their level of knowledge, skills and confidence and then tailoring support through interventions that improve their activation, helps to empower and enables them to be in control of their own health and care (Hibbard & Gilburt, 2014).

Supported Self-Management Programme consists of:

  • Patient Activation Measure (PAM) to assess likelihood of being able to self–manage;

  • Supportive resources to increase skills, knowledge and confidence;

  • My Healthcare Journal.

Methods Following assessment of activation using the PAM, the young adults identify their goals and priorities and a personalised care plan is documented in ‘My Healthcare Journal’; an intervention to support self-management. Other interventions the young adults are introduced to include self-management education, health coaching and access to community resources such as peer support and group based activities. Activation is re-measured together with assessment of satisfaction and achievement of personal goals and autonomy.

Results Increased personal autonomy and improved health outcomes are anticipated, together with greater effectiveness around resource allocation.

Conclusion Supported self-management provides a means of empowering young adults, enabling them to address goals and priorities. Resources are tailored to individual needs.

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