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Experience-based design, co-design and experience-based co-design in palliative and end-of-life care
  1. Erica Borgstrom1 and
  2. Stephen Barclay2
  1. 1 School of Health, Wellbeing and Social Care, Open University, Milton Keynes, UK
  2. 2 Primary Care Unit, Department of Public Health and Primary Care, University of Cambridge, Cambridge, UK
  1. Correspondence to Dr Erica Borgstrom, School of Health, Wellbeing and Social Care, Open University, Milton Keynes MK7 6AA, UK; Erica.borgstrom{at}


Experience-based design, co-design, and experience-based co-design can be used within healthcare to design services that improve the patient, carer and staff experience of the services. As palliative and end-of-life care centrally value person-centred care, we believe that service designers, commissioners and those tasked with making quality improvements will be interested in this growing field. This paper outlines these approaches—with a particular emphasis on experience-based co-design—and describes how they are and can be used within palliative and end-of-life care. Based on a rapid review and several case studies, this article highlights the key lessons learnt from previous projects using these approaches and discusses areas for improvement in current reporting of service design projects.

  • experience
  • co-design
  • palliative care
  • quality improvement

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  • Twitter Follow Erica Borgstrom @ericaborgstrom

  • Contributors EB and SB conducted the review and wrote the subsequent report and this paper.

  • Funding The authors received funding from Marie Curie to complete the research related to this article.

  • Disclaimer The views are the authors' own, not those of the funders.

  • Competing interests None declared.

  • Provenance and peer review Not commissioned; externally peer reviewed.

  • Data sharing statement More details of the methods employed in the review and the sources can be found in the report written by EB and SB (2015) for Marie Curie, cited in this article.