Background Poole Hospital NHS Foundation Trust is participating in Building on the best (Botb) – a national initiative to improve end of life care in acute hospitals. The Ambitions Framework recognises the important role of partnerships between communities and professional services.
A Public Partnership Group was created to support delivery of the projects comprising Botb.
Methods The group was recruited to following an article in the local press entitled: ‘Poole Hospital wants to improve its end of life care. Can you help make it even better?’ The public were invited to respond to the article by email. Respondents were screened and if thought suitable for inclusion in the group, were invited along for the inaugural meeting in January 2017.
The group collectively decided to name themselves The Living Well Group and have continued to meet on a six weekly basis for a two hour meeting facilitated by a Palliative Care Consultant and Transformation Manager in End of Life Care.
Results The Living Well Group has evolved into a dynamic source of opinions and ideas to represent the local population. They have contributed to the following initiatives:
Raising awareness and promoting dignity and compassion in dying
Design of a new Advance Care Planning document
Ideas for a befriending service at end of life in the hospital
Involving families in the care of dying patients – touch, mouth care and hearing
Feasibility of creating a standard of time to administration of analgesia
A patient experience of care questionnaire at end of life
Conclusions The public are willing to contribute directly to the development of end of life care initiatives and it is possible to create an effective working group following advertisement in the local press.
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