Table of contents

Abstracts

• 1 Evaluation of a nurse directed beds model of care in a stand-alone hospice inpatient unit (IPU) (1 September, 2018)

  Charlotte Brigden, Andrew Thorns, Wendy Hills, Amanda Timms
• 2 Learning from a new model of end of life care for older people with frailty/multi-morbidities – the challenges and opportunities for specialist palliative care services (1 September, 2018)

  Jan Noble, Caroline Nicholson, Laura Harris, Heather Richardson
• 3 Is it acceptable to use technical monitoring to assess palliative care patients’ level of consciousness? a qualitative exploration with patients and relatives (1 September, 2018)

  Anna-Maria Krooupa, Paddy Stone, Stephen McKeever, Bella Vivat
• 4 Designing dying well: toward a new architectural approach of in-patient palliative care environments (1 September, 2018)

  Annie Bellamy
• 5 What needs to change to better support carers at end of life? a multi-perspective mixed methods study to identify recommendations for change in organisational structures and processes (1 September, 2018)

  Gail Ewing, Gunn Grande
• 6 Compassionate neighbours – an innovative model building caring communities (1 September, 2018)

  Carly Attridge, Heather Richardson
• 7 Exploring healthcare professionals’ attitudes to future care planning with older adults in hospital: qualitative research co-design through multi-professional patient and carer involvement (1 September, 2018)

  Anna-Maria Bielinska, Stephanie Archer, Catherine Urch, Ara Darzi
• 8 How do hospices facilitate social support? (1 September, 2018)

  Natasha Bradley, Mari Lloyd-Williams, Chris Dowrick
• 9 Using what people value to develop new interventions in palliative care: a multilevel level review approach (1 September, 2018)

  B Candy, M Armstrong, R Amey, J Booth, K Flemming, N Kupeli, V Maclean, J Preston, P Stone, S Wilkinson
• 10 Timely identification and support for carers of people at the end of life through the adult carer support plan: triangulating three data sources (1 September, 2018)

  Susan Swan, Richard Meade, Emma Carduff
• 11 Filling the void: preparing future junior doctors for challenging conversations (1 September, 2018)

  Hannah Costelloe, Alice Copley, Andrew Greenhalgh, Andrew Foster, Pratik Solanki
• 12 Feasibility of an online implementation toolkit for palliative care services seeking to implement a carer-centred process of assessment and support (1 September, 2018)

  Janet Diffin, Gail Ewing, Christine Rowland, Gunn Grande
• 13 Exploring patient safety incidents arising from advance care planning for end of life patients: a mixed methods analysis of incident reports (1 September, 2018)

  Toby Dinnen, Huw Williams, Simon Noble, Adrian Edwards, Joyce Kenkre, Peter Hibbert, Liam Donaldson, Andrew Carson-Stevens
• 14 Enabling tailored and coordinated support for family carers of people with motor neurone disease through adaptation of a carer support needs assessment tool (CSNAT) intervention (1 September, 2018)

  Gail Ewing, Sarah Croke, Christine Rowland, Gunn Grande
• 15 Triggers for the pharmacological management of delirium in palliative care: a mixed methods study (1 September, 2018)

  Catherine L Fairfield, Anne M Finucane, Juliet A Spiller
• 16 Delirium care of hospice patients: a qualitative interview study with staff and volunteers (1 September, 2018)

  Imogen Featherstone, Miriam Johnson, Lesley Jones, Eleonora Coppo, Annmarie Hosie, Shirley H Bush, Najma Siddiqi, Johanna Taylor, Andrew Teodorczuk
• 17 Key information summary (KIS) generation for people who died in scotland in 2017: a mixed methods study (1 September, 2018)

  Anne M Finucane, Deborah Davydaitis, Emma Carduff, Zoe Horseman, Paul Baughan, Richard Meade, Tim Warren, Julia Tapsfield, Juliet Spiller, Sandra Campbell, Scott A Murray
• 18 Brief engagement and acceptance coaching in community and hospice settings (the beaches study): protocol for developing and pilot testing an evidence-based intervention to enhance wellbeing at transition into palliative care (1 September, 2018)

  Nick Hulbert-Williams, David Gillanders, Anne Finucane, Susan Millington, Sabrina Norwood, Juliet Spiller, Jenny Strachan, Brooke Swash
• 19 ‘The model for dementia palliative care project’: implementing knowledge transfer and exchange as a core activity (1 September, 2018)

  Siobhán Fox, Jonathan Drennan, Suzanne Guerin, George Kernohan, Marie McKeon, Aileen Murphy, Mary Rabbitte, Amy Robins, Suzanne Timmons
• 20 Validation of the support needs approach for patients (SNAP) tool to enable patients with advanced copd to identify and express their support needs to healthcare professionals (1 September, 2018)

  Carole Gardener, Gail Ewing, Morag Farquhar
• 21 Identification and management of delirium in the palliative inpatient unit (1 September, 2018)

  Andrew Gill, Clare Rayment, Chris Kane
• 22 GP perceptions of the adequacy of community-based care for patients with advanced heart failure in a uk region (NI): a qualitative study (1 September, 2018)

  Lisa Graham-Wisener, Jingwen Jessica Chen, Kathryn Gamble, Kieran McGlade, Jennifer Doherty, Patrick Donnelly, Carol A Stone
• 23 Findings from a pilot and feasibility trial of a music therapy intervention in specialist palliative care (1 September, 2018)

  Lisa Graham-Wisener, Joanne Reid, Tracy McConnell, Kerry McGrillen, Jenny Kirkwood, Miriam McKeown, Mike Clarke, Joan Regan, Naomi Hughes, Sam Porter
• 24 Understanding and management of terminal illness within tanzanian traditional medicine (1 September, 2018)

  Naomi Higton, Emma Grace Lewis, Richard Walker, Richard Lee
• 25 Evidence based training for hostel staff around supporting homeless people with deteriorating health (1 September, 2018)

  Briony F Hudson, Caroline Shulman, Peter Kennedy, Niamh Brophy, Patrick Stone
• 26 ‘What matters to me?’ staff perspectives on the identification and documentation of ‘what matters’ and the role of values-clarification in palliative care settings (1 September, 2018)

  Jack Irvine, Juliet Spiller, Anne Finucane
• 27 Understanding public attitudes: a crucial component for developing palliative care services (1 September, 2018)

  Ishrat Islam, Anthony Byrne, Annmarie Nelson
• 28 Quality of life of patients attending marie curie day hospice over time: preliminary findings from a prospective cohort study (1 September, 2018)

  Sarah Cudmore, Anne Finucane, Gail Holloway, Pippa Grundy, Erna Haraldsdottir, Kevin Brazil, W George Kernohan
• 29 Multi-disciplinary palliative care for men living with duchenne: a qualitative interview study (1 September, 2018)

  Sheonad Laidlaw, Emma Carduff
• 30 Consensus and consistency: development of a core outcome set for evaluating bereavement support in palliative care (1 September, 2018)

  Mirella Longo, Hannah Scott, Kathy Seddon, Jim Fitzgibbon, Fiona Morgan, Sara Pickett, Anthony Byrne, Stephanie Sivell, Annmarie Nelson, Emily Harrop
• 31 A multi-site retrospective case note review for clinical practices of constipation in specialist palliative care settings (1 September, 2018)

  S McIlfatrick, DHL Muldrew, E Carduff, M Clarke, J Coast, A Finucane, L Graham-Wisener, F Hasson, P Larkin, J MacArtney, N McCorry, P Slater, M Watson, E Wright
• 32 Examining the key factors impacting on the implementation of an educational program on constipation in specialist palliative care (1 September, 2018)

  S McIlfatrick, DHL Muldrew, E Carduff, M Clarke, J Coast, A Finucane, L Graham-Wisener, F Hasson, P Larkin, J MacArtney, N McCorry, P Slater, M Watson, E Wright
• 33 Development of an intervention to support lung cancer patients and their clinicians when considering systematic anti-cancer therapy: the pact study, a prospective multi-centre multi-methods five-stage qualitative study (1 September, 2018)

  Annmarie Nelson, Anthony Byrne, Stephanie Sivell, Mirella Longo, Simon Noble, Jason Lester, Despina Anagnostou, Catherine Sampson
• 34 Specialist palliative care providers’ perspectives on how to meet the service delivery challenges in adult care homes in england: a national survey (1 September, 2018)

  Alisha Newman, Gemma Allnatt, Nicola Bowtell, Kerry Archer-Dutton, Anita Hayes, Mirella Longo, Andy Pring, Amanda Read, Ros Taylor, Julia Verne, Annmarie Nelson
• 35 Online randomised controlled trial to improve clinical estimates of survival (ORACLES): study design (1 September, 2018)

  Linda Oostendorp, Nicola White, Priscilla Harries, Sarah Yardley, Christopher Tomlinson, Federico Ricciardi, Hulya Gokalp, Patrick Stone
• 36 ‘Spells of care’ could work magic in the community (1 September, 2018)

  Janice Penman
• 37 The role of the research nurse in developing a research culture at a hospice (1 September, 2018)

  Rachel Perry
• 38 From theory to clinical practice: lessons learned from the delivery of a breathlessness support service (1 September, 2018)

  Charles C Reilly, Matthew Maddocks, Caroline J Jolley, J Moxham, Irene J Higginson
• 39 Improving coordination of care – marie curie nursing service london and cmc (1 September, 2018)

  Debbie Ripley
• 40 Detailing public involvement (PI) within a study of bereavement support services for adults bereaved through advanced illness (1 September, 2018)

  Kathy Seddon, Jim Fitzgibbon, Barbara Harrington, Fiona Morgan, Hannah Scott, Stephanie Sivell, Sara Pickett, Mirella Longo, Anthony Byrne, Annmarie Nelson, Emily Harrop
• 41 ‘We should not shy away from asking what it is that patients want’ a supplementary qualitative analysis of the jla peolcpsp free text data (1 September, 2018)

  S Sivell, J Baillie, J VanGodwin, A Byrne, A Nelson
• 42 Bittersweet life in the face of loss: the experience of parenteral nutrition for women with ovarian cancer and their relatives (1 September, 2018)

  Anne Marie Sowerbutts, Simon Lal, Andrew Clamp, Gordon C Jayson, Chris Todd, Anne-Marie Raftery, Lisa Hardy, Eileen Sutton, Jana Sremanakova, Sorrel Burden
• 43 Decision making about prognoses in multidisciplinary teams: an ethnographic study (1 September, 2018)

  Florence Todd Fordham, Angela McCullagh, Paddy Stone
• 44 An evidenced-based heuristics model (or rule of thumb) to improve doctors’ intuition about when patients are imminently dying (1 September, 2018)

  Nicola White, Priscilla Harries, Adam JL Harris, Victoria Vickerstaff, Philip Lodge, Catherine McGowan, Ollie Minton, Christopher Tomlinson, Adrian Tookman, Fiona Reid, Patrick Stone
• 45 Maximising recruitment to clinical trials in hospices- experience of a multicentre study using the ‘social marketing mix framework’ (1 September, 2018)

  Clare White, Simon Noble, Max Watson, Flavia Swan, Miriam Johnson
• 46 Patient safety in palliative care: a mixed methods study of reports to a national database of serious incidents (1 September, 2018)

  Iain Yardley, Sarah Yardley, Huw Williams, Andrew Carson-Stevens, Liam J Donaldson
• 47 The impact of supportive-expressive group therapy (SEGT) as an intervention on health-related outcomes and social support for people with advanced disease: a systematic review (1 September, 2018)

  Eva Bei, Nuriye Kupeli, Bridget Candy
• 48 Junior doctors and end of life care: a systematic review and narrative synthesis (1 September, 2018)

  Aamena Bharmal, Tessa Morgan, Stephen Barclay
• 49 The use of patient-held records by children and young people managing a health condition: a realist review of the literature (1 September, 2018)

  Janet Diffin, Bronagh Byrne, Peter O’Halloran
• 50 Barriers to effective implementation of end of life care. A systematic review (1 September, 2018)

  Emily Dobson
• 51 How do family carers feature in end of life care policy? scoping review and narrative summary of uk national policy/guidelines on implementing carer assessment and support (1 September, 2018)

  Gail Ewing, Gunn Grande
• 52 Drug therapy for delirium in terminally ill adults: a cochrane systematic review (1 September, 2018)

  A Finucane, L Jones, B Leurent, E Sampson, P Stone, A Tookman, B Candy
• 53 The palliative care needs of people with motor neurone disease (MND) and their informal caregivers: a time for change (1 September, 2018)

  Kate Flemming, Victoria Turner
• 54 Interventions and support for people bereaved through advanced progressive illness: a mixed-methods systematic review (1 September, 2018)

  Fiona Morgan, Hannah Scott, Mirella Longo, Anthony Byrne, Jim Fitzgibbon, Annmarie Nelson, Sara Pickett, Kathy Seddon, Stephanie Sivell, Emily Harrop
• 55 Palliative care for people with motor neurone disease. An integrative literature review (1 September, 2018)

  Lorna Hollowood
• 56 Rapid review of dissemination strategies and activities as listed in published protocol papers (1 September, 2018)

  Maria Giovanna Palmieri, Fiona Morgan, Mirella Longo, Clive Gregory, Annmarie Nelson, Julie Hepburn
• 57 Evidence into practice: novel approaches to underpinning evidence-based innovations in care (1 September, 2018)

  Mala Mann, Annmarie Nelson, Amanda Woodward, Ishrat Islam, Anthony Byrne
• 58 Support needs of informal carers of patients with copd and implications for improving carer support (1 September, 2018)

  Kerry Micklewright, Morag Farquhar
• Author index (1 September, 2018)