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P-151 Human rights in end of life care: development and implementation of a practitioner’s guide
  1. Jacqui Graves and
  2. Sue Hogston
  1. Sue Ryder, London, UK


Background There have been many reminders of losing sight of our humanity when delivering health care: the Mid-Staffordshire Enquiry (2013) and Winterbourne View (2012). The Care Quality Commission’s new approach and the End of Life Care Education Framework for Scotland, are based on human rights principles.

Mental Capacity and Safeguarding training is mandatory for most staff and yet human rights, which are the foundation for both, has been overlooked.

To meet this gap in practice, Sue Ryder worked with the British Institute of Human Rights to develop a Practitioners Guide. Following the learning from the demise of the Liverpool Care Pathway, a grant was secured from the Burdett Trust for Nursing to deliver a three year training programme.

Aim To educate and empower the workforce to feel more confident in embracing human rights as an integral component to end of life care, by building on existing knowledge and experience, increasing awareness of how human rights can be used to aid decision making and ensure human rights values are at the heart of personalised care.

Methods Sue Ryder is delivering a three tiered training programme: half day workshops for the non-registered workforce; 1 day workshops for the registered workforce; two-day workshops for train the trainers to enable sustainability. Nottingham Centre for the Advancement of Research in End of Life Care will evaluate the training using a longitudinal mixed methods design, using pre and post training confidence questionnaires and interviews.

Results We have delivered four workshops and educated 49 practitioners to May. A further 26 workshops are planned. We project to have educated 444 practitioners, including 24 trainers, by the end of 2017. Qualitative feedback has been overwhelmingly positive.

Conclusion Everyone working in end of life care should understand their human rights responsibilities in order to deliver personalised care. The Sue Ryder training programme will increase practitioners understanding and confidence to fulfil their duty.

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