Background The person with the diagnosis and their friends/family should be able to talk things over with a range of agencies to ask questions about the diagnosis and what it means for them. Information on help and support is available but is often poorly signposted. People with dementia (PwD) should have access to information on how to stay physically and mentally well in their own homes.
Aims Dementia hubs aim to fill this gap, providing practical information and support for PwD and their families/carers, and also for those who are worried about their memory. With clear and sensible information about recognising symptoms, research, getting help, managing financially, staying at home, treatment, being a carer and staying positive, these events will help PwD and their families to make sure that they can stay well and happy as long as possible.
Methods A ‘Listening Event’ was held before both Dementia Hubs commenced, with the purpose of allowing PwD and their families the chance to have their say about what support they would like to see at a new hub initiative. The Hubs provide advice/information from a wide range of organisations and individuals, eg nurses, financial planners, social workers, benefits advisers, carers support, the CQC, the Alzheimer’s Society, Age UK and many others.
Results The Bay Dementia Hub which is held at St John’s Hospice commenced Sept 2016 and has gone from strength to strength. Over 16 service-providers attend every month. The Fylde Coast Dementia Hub is held at Trinity Hospice has only recently started but it is hoped that it will be just as successful.
Conclusion The Hubs bring together people from many organisations and disciplines, within and beyond the hospice, to facilitate a ‘one-stop shop’. To have service providers and health care support, all under one roof is quite unique!
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