Aims and objectives To establish documented evidence of the preferred place of death (PPD) of people with a learning disability (LD) and establish if PPD was achieved and documented. Additionally; to establish where initial conversation took place with regards to PPD. To establish if an “easy read” Preferred Priorities for Care was used or not. To add some narrative to capture the complexity of caring for each individual with a learning disability.
Background This audit evolved as an outcome of a previous learning disabilities audit in January 2015. Following discussion at a multi-disciplinary team meeting it was agreed that a further audit on an individual’s PPD would highlight if the hospice was meeting their objectives within the learning disability pathway under future planning considerations.
Method A qualitative retrospective audit was completed from 12 patient’s notes on i-care entries, who were known to have a learning disability over a one year period.
Results All deaths achieved their PPD with 100 percent documented evidence. There was a rich narrative and person-centred care, demonstrating continuity.
Conclusion The results revealed aspiring achievements with significant learning outcomes for the hospice multi-disciplinary teams. Actions identified were: An easy read booklet for preferred priorities for care to be offered where appropriate: To highlight the importance of documenting capacity/PPD discussions where appropriate. Current notes to be reviewed with regards to power of attorney/registration. To promote awareness of the resource folder in the clinical nurse specialist office: To share the importance of the narrative and adherence to the standard in the learning disability pathway.
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