Article Text
Abstract
Background The 2015 palliative care budget is €72 million (Euros) but up to €1.3 billion spent on end of life care annually – much of this larger figure unplanned and uncoordinated. Geographic and other inequities evident in palliative care provision.
Aim Build support for the development and implementation of a National Strategy on Palliative Care, End of Life and Bereavement.
Method Multi-layered approach to raising awareness and building consensus:
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Targeting the correct audience who can make change happen
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Presenting robust evidence including costs justifying reform and investment
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Demonstrating that issues affect a significant number of people
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Sharing experience and knowledge
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Knowing their policy priorities
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Staying resilient – advancing and introducing new angles to argument
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Engaging directly as advocates within the political system at all political levels – developing relationships with politicians
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Identifying advocates in the public service to promote policy change
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Using a variety of new and existing projects and programmes
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Encouraging patients and families to be self-advocates – using a novel project for discussing and recording future care preferences
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Supporting healthcare professionals to become effective advocates for patients
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Creating alliances to lobby for policy development
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Using media opportunities to sell the message
Results The recognition of the importance of a strategic approach to palliative and end of life care acknowledged in Parliamentary Committee Report affords an opportunity to develop further policy and practice.
Conclusion This a long – term exercise, dependent on supporting the implementation plan, building momentum and promoting a public dialogue on sensitive issues around dying, death and bereavement.