Article Text

Diagnosing dying: an integrative literature review
  1. Catriona Kennedy1,
  2. Patricia Brooks-Young2,
  3. Carol Brunton Gray3,
  4. Phil Larkin4,
  5. Michael Connolly5,
  6. Bodil Wilde-Larsson6,
  7. Maria Larsson6,
  8. Tracy Smith7 and
  9. Susie Chater8
  1. 1Department of Nursing and Midwifery, University of Limerick, Edinburgh Napier University, Limerick, Ireland
  2. 2Edinburgh Napier University NHS, Edinburgh, UK
  3. 3 Edinburgh Napier University, Edinburgh, UK
  4. 4University College Dublin, Dublin, Ireland
  5. 5All Ireland Institute for Hospice and Palliative Care/University College Dublin, Dublin, Ireland
  6. 6University of Karlstad Universitetsgatan 2, Karlstad, Sweden
  7. 7University of Karlstad Universitetsgatan 2, Karlstad, Sweden
  8. 8Department of Palliative Medicine, St Columba's Hospice, Edinburgh, UK
  1. Correspondence to Professor Catriona Kennedy, Department of Nursing and Midwifery, University of Limerick, Health Sciences Building, Room HS3-037, Limerick, Ireland; catriona.kennedy{at}ul.ie

Abstract

Background To ensure patients and families receive appropriate end-of-life care pathways and guidelines aim to inform clinical decision making. Ensuring appropriate outcomes through the use of these decision aids is dependent on timely use. Diagnosing dying is a complex clinical decision, and most of the available practice checklists relate to cancer. There is a need to review evidence to establish diagnostic indicators that death is imminent on the basis of need rather than a cancer diagnosis.

Aim To examine the evidence as to how patients are judged by clinicians as being in the final hours or days of life.

Design Integrative literature review.

Data sources Five electronic databases (2001–2011): Cochrane Central Register of Controlled Trials (CENTRAL) on The Cochrane Library, MEDLINE, EMBASE, PsycINFO and CINAHL. The search yielded a total of 576 hits, 331 titles and abstracts were screened, 42 papers were retrieved and reviewed and 23 articles were included.

Results Analysis reveals an overarching theme of uncertainty in diagnosing dying and two subthemes: (1) ‘characteristics of dying’ involve dying trajectories that incorporate physical, social, spiritual and psychological decline towards death; (2) ‘treatment orientation’ where decision making related to diagnosing dying may remain focused towards biomedical interventions rather than systematic planning for end-of-life care.

Conclusions The findings of this review support the explicit recognition of ‘uncertainty in diagnosing dying’ and the need to work with and within this concept. Clinical decision making needs to allow for recovery where that potential exists, but equally there is the need to avoid futile interventions.

  • Clinical decisions
  • Terminal care

This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 3.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/3.0/

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