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Table of contents

June 2012 - Volume 2 - 2

Abstracts from the Marie Curie Annual Palliative Care Research Conference 2012

BMJ Supportive & Palliative Care: 2 (2)

Editorials

Editor's choice (1 June, 2012)
Bill Noble
Lansley's monster is leaving the laboratory (1 June, 2012)
Bill Noble
Consequences of cancer treatment: a new challenge for supportive and palliative care (1 June, 2012)
Jane Maher

Letters

Letter (1 June, 2012)
James M Beattie, Miriam J Johnson
Response to editorial on subcutaneous diuretics (1 June, 2012)
Duwarakan Satchithananda, Angela Ingram, Claire Hookey
Response to compassionate community networks: supporting home dying (1 June, 2012)
Clare M Carolan
Ethical issues: invasive ventilation in amyotrophic lateral sclerosis (16 April, 2012)
Rossella Spataro, Vincenzo La Bella

Features

Why clinicians should embrace individual budgets (31 March, 2012)
Simon John Duffy
ICDs in end-stage heart failure (1 June, 2012)
Stephen J Pettit, Susan Browne, Karen J Hogg, Derek T Connelly, Roy S Gardner, Carl R May, Una Macleod, Frances S Mair

News and Notes

News and updates from palliativedrugs.com
(1 June, 2012)
Andrew Wilcock, Sarah Charlesworth

Short cuts

Articles of interest in other scholarly journals (1 June, 2012)
Jason Boland

Research

Barriers to providing end-of-life care for people with dementia: a whole-system qualitative study (29 February, 2012)
Karen Harrison Dening, Wendy Greenish, Louise Jones, Uttara Mandal, Elizabeth L Sampson
Improving end of life care for people with dementia: a rapid participatory appraisal (31 March, 2012)
Elizabeth Sampson, Uttara Mandal, Amanda Holman, Wendy Greenish, Karen Harrison Dening, Louise Jones
Supporting family caregivers of hospitalised palliative care patients: a psychoeducational group intervention (24 March, 2012)
Peter L Hudson, Thomas Trauer, Elizabeth Lobb, Rachel Zordan, Anne Williams, Karen Quinn, Michael Summers, Kristina Thomas
Introducing the Palliative Performance Scale to clinicians: the Grampian experience (31 March, 2012)
Gordon Linklater, Sally Lawton, Shona Fielding, Lisa Macaulay, David Carroll, Dong Pang
Comparing the needs of families of children dying from malignant and non-malignant disease: an in-depth qualitative study (24 March, 2012)
Jayne Price, Joanne Jordan, Lindsay Prior, Jackie Parkes
Socioeconomic position and place of death of cancer patients (29 February, 2012)
Mette Asbjoern Neergaard, Anders Bonde Jensen, Ineta Sokolowski, Frede Olesen, Peter Vedsted
Provision of palliative care for life-limiting disease in a low income country national hospital setting: how much is needed? (1 June, 2012)
Jane Lewington, Elizabeth Namukwaya, Julie Limoges, Mhoira Leng, Richard Harding
‘They patiently heard what we had to say…this felt different to me’: the palliative care needs and care experiences of advanced cancer patients and their families in Bangladesh (1 June, 2012)
Rogieh Dehghan, Jairam Ramakrishnan, Nezzan Uddin-Ahmed, Richard Harding
End of life care in Wales: evaluation of a care pathway-based implementation strategy (1 June, 2012)
Rosalynde Patricia Johnstone, Angela Jones, Andrew Fowell, Christopher Richard Burton, Jo Rycroft-Malone
Various formulations of oral transmucosal fentanyl for breakthrough cancer pain: an indirect mixed treatment comparison meta-analysis (1 June, 2012)
Ravi Jandhyala, John Fullarton

Review

Management of cancer-associated thrombosis in people with advanced disease (29 February, 2012) Free
Simon Noble, Miriam J Johnson

Case report

From Cork to Budapest by Skype: living and dying (31 March, 2012)
Jodie E Battley, Lucy Balding, Oonagh Gilligan, Catherine O'Connell, Tony O'Brien

Poem

‘Felix Randal’ by Gerard Manley Hopkins (1844–1889) (1 June, 2012)

ACPEL Abstracts

Oral Abstracts - Thursday 31 May 2012 - Plenary Session 1 – Public Policy Issues: Public Policy: Where we've been…Where we need to go (1 June, 2012) Free
J Lynn
Oral Abstracts Thursday 31 May 2012 Plenary Session 1 – Public Policy Issues: Disability Perspectives on Public Policy in Advance Care Planning (1 June, 2012) Free
D Coleman
Oral Abstracts Thursday 31 May 2012 Plenary Session 1 – Public Policy Issues: Minorities and Advance Care Planning (1 June, 2012) Free
G Ramsey
Oral Abstracts - Concurrent Session 1 Systems and Community Engagement: The ‘heart’ of the matter: that's where advance care planning engagement begins (1 June, 2012) Free
W Robinson, S Grant
Oral Abstracts - Concurrent Session 1 Systems and Community Engagement: How sharing stories can improve service coordination to provide optimal care (1 June, 2012) Free
J Hawke
Oral Abstracts - Concurrent Session 1 Systems and Community Engagement: Promoting advanced care planning in the community (1 June, 2012) Free
A Davis
Oral Abstracts - Concurrent Session 1 Systems and Community Engagement: How to evaluate an advance care planning policy – strategies for each stage of implementation (1 June, 2012) Free
TL Wityk Martin, B Berg, J Simon
Oral Abstracts - Concurrent Session 1 Systems and Community Engagement: Three steps forward two steps back: implementing advance care planning across a health care system (1 June, 2012) Free
A Becker
Oral Abstracts - Concurrent Session 1 Systems and Community Engagement: An innovative approach to improve advance care planning: catalysing active patient decision making at end-of-life (1 June, 2012) Free
H D. Blank
Oral Abstracts - ACP Concepts/Evaluation: Shared decision making and advance care planning-underpinnings, similarities and differences (1 June, 2012) Free
T Krones, N Biller Andorno, J in der Schmitten, C Mitchell, R Spirig, K Zaugg
Oral Abstracts - ACP Concepts/Evaluation: Advance directives: what's in a form? (1 June, 2012) Free
J Moskop, Chaplain J Foster
Oral Abstracts - ACP Concepts/Evaluation: Why isn't organ donation part of advance care planning? (1 June, 2012) Free
P Saul
Oral Abstracts - ACP Concepts/Evaluation: The role of dignity in advance care planning among homeless individuals (1 June, 2012) Free
E Ratner
Oral Abstracts - ACP Concepts/Evaluation: Physician orders for life-sustaining treatment (POLST): unresolved conceptual and ethical questions (1 June, 2012) Free
G Marckmann, J in der Schmitten
Oral Abstracts - ACP Concepts/Evaluation: The effectiveness of employing exclusive advance care planning (ACP) clinicians (1 June, 2012) Free
K Wallis, K Detering, K Whiteside, D Mawren, W Silvester
Oral Abstracts - Decision Aids/IT: Patients with CHF find decision aid for ACP helpful and computer-generated advance directive accurate (1 June, 2012) Free
MJ Green, J Hensel, E Farace, Whitehead, Lehmann, BH Levi
Oral Abstracts - Decision Aids/IT: Advance care planning decision aid improves clinician understanding of wishes of patients with ALS (1 June, 2012) Free
BH Levi, A Brothers, M Whitehead, Z Simmons, E Farace, J Schubart, E Lehmann, MJ Green
Oral Abstracts - Decision Aids/IT: Using video in advance care planning for progressive pancreas and hepatobiliary cancer patients (1 June, 2012) Free
A.S. Epstein, A.E. Volandes, E.M. O'Reilly
Oral Abstracts - Decision Aids/IT: The development and validation of a questionnaire to audit advance care planning (ACP) (1 June, 2012) Free
DK Heyland, P Dodek, F Lamontagne, JJ You, D Barwich, C Tayler, P Porterfield, J Simon, Bert Enns
Oral Abstracts - Decision Aids/IT: Patient and provider perceptions of advance care planning using electronic health record patient portals (1 June, 2012) Free
S Bose-Brill, C Kobe, T Pressler, Celia Wills
Oral Abstracts - Decision Aids/IT: What might we expect from our EMR? (1 June, 2012) Free
B Hammes
Oral Abstracts - National ACP Systems: The development of ACP in New Zealand: the roll the National ACP Cooperative (1 June, 2012) Free
L. Manson, B. Snow, K. Grundy, T. Read, S. Rishworth, Mary Leigh Moore, J. Daltrey, M. Naish
Oral Abstracts - National ACP Systems: Using mandatory national safety and quality standards to embed advance care planning in practice (1 June, 2012) Free
N Dunbar, J Hill
Oral Abstracts - National ACP Systems: Designing advance care (incapacity) planning and advance directives legislation in British Columbia (1 June, 2012) Free
D McGregor, C Clelland, D Barwich, P Porterfield, C Hoffmann
Oral Abstracts - National ACP Systems: The unique Singapore medico-legal landscape: impact on advance care planning & end of life decision-making (1 June, 2012) Free
S Menon
Oral Abstracts - National ACP Systems: The development of statutory law in South Australia to support advance care planning (1 June, 2012) Free
R Hunt
Oral Abstracts - National ACP Systems: The National Healthcare Decisions Day in the USA (1 June, 2012) Free
K Long
Oral Abstracts - Plenary Session 2 – Advance Decision-Making and Critical Care: Presentation title to be advised (1 June, 2012) Free
D White
Oral Abstracts - Concurrent Session 2 ACP and Chronic Illness: A collaborative engagement of advance care planning within a diverse chronic disease population (1 June, 2012) Free
D Murphy-Burke, W Robinson
Oral Abstracts - Concurrent Session 2 ACP and Chronic Illness: Advanced care planning metrics for stage IV cancers and strategies for improved utilisation in oncology-settings (1 June, 2012) Free
S Mikan, D Patt, R Hoverman
Oral Abstracts - Concurrent Session 2 ACP and Chronic Illness: Nurse practitioner Bi-level clinics for patients with morbid obesity (1 June, 2012) Free
D Hart
Oral Abstracts - Concurrent Session 2 ACP and Chronic Illness: Talking about tricky transitions with young men with Duchenne muscular dystrophy and their families (1 June, 2012) Free
D Abbott, J Carpenter
Oral Abstracts - Large Scale Program: Ten year outcomes after a state commission on end of life care (1 June, 2012) Free
E Ratner
Oral Abstracts - Large Scale Program: Implementing the British Columbia practice support program in end of life care (1 June, 2012) Free
C Clelland, D Barwich, D McGregor
Oral Abstracts - Large Scale Program: Sustaining respecting patient choices® (RPC) advance care planning (1 June, 2012) Free
R Hunt, L Jones, L Owen, M Seal
Oral Abstracts - Large Scale Program: Co-designing ACP service delivery with consumers in New Zealand (1 June, 2012) Free
L. Manson, B. Snow
Oral Abstracts - Minorities/Disabilities: Improving advance care planning in a racially and ethnically diverse community (1 June, 2012) Free
K. Pecanac, M. Repenshek
Oral Abstracts - Minorities/Disabilities: Sorry, but it's my business! (1 June, 2012) Free
M Wighton
Oral Abstracts - Minorities/Disabilities: A review of evidence supporting certain disability rights concerns about “end of life” advocacy (1 June, 2012) Free
D Coleman, S Drake
Oral Abstracts - Minorities/Disabilities: H.R. 1589: addressing racial and ethnic disparities in advance care planning among medicare beneficiaries (1 June, 2012) Free
A Effiong, D Myrick
Oral Abstracts - Community Engagement: Supporting community engagement around end of life conversations & care, an asset- based approach (1 June, 2012) Free
M Matthiesen, J Ashton, E Owen, K Froggatt, J McKnight, J Kretzmann
Oral Abstracts - Community Engagement: Withdrawn (1 June, 2012) Free
Oral Abstracts - Community Engagement: California POLST education program (1 June, 2012) Free
J Hatchett, C Evans
Oral Abstracts - Community Engagement: Whose life is it anyway? – informed choices for young people and their families (1 June, 2012) Free
P Saul
Oral Abstracts - Plenary Session 3 – How Do We Know If Planning Changes the Outcome? Measuring Success: Presentation title to be advised (1 June, 2012) Free
N Wenger
Oral Abstracts - Plenary Session 3 – How Do We Know If Planning Changes the Outcome? Measuring Success: Measuring success in advance care planning. What outcomes are measurable, and what is important? (1 June, 2012) Free
K Detering
Oral Abstracts - Plenary Session 3 – How Do We Know If Planning Changes the Outcome? Measuring Success: Presentation title to be advised (1 June, 2012) Free
K Thomas
Oral Abstracts - Friday 1 June 2012 Plenary Session 4 – Changing the Game: Political Activism to Improve Health Care for Those with Advanced Illness – How the Coalition for Transformation of Advanced Care Aims to Reform the Care of Patients with Advanced Illness: The need for activism, building a coalition for change, and public engagement (1 June, 2012) Free
T Koutsoumpas
Oral Abstracts - Friday 1 June 2012 Plenary Session 4 – Changing the Game: Political Activism to Improve Health Care for Those with Advanced Illness – How the Coalition for Transformation of Advanced Care Aims to Reform the Care of Patients with Advanced Illness: Advanced Care: Why We Need New Clinical Model (1 June, 2012) Free
B Stuart
Oral Abstracts - Friday 1 June 2012 Plenary Session 4 – Changing the Game: Political Activism to Improve Health Care for Those with Advanced Illness – How the Coalition for Transformation of Advanced Care Aims to Reform the Care of Patients with Advanced Illness: How do we train professionals to deliver a new model of care? (1 June, 2012) Free
C Hylton-Rushton
Oral Abstracts - Concurrent Session 3 Use of IT: Reliability of a computer-based decision aid for advance care planning (1 June, 2012) Free
J. Schubart, MJ. Green, M. Whitehead, E. Farace, E. Lehmann, BH. Levi
Oral Abstracts - Concurrent Session 3 Use of IT: Use of an interactive computer program for advance care planning with African American participants (1 June, 2012) Free
BH Levi, J Schubart, S Markham, M Whitehead, E Farace, E Lehmann, MJ Green
Oral Abstracts - Concurrent Session 3 Use of IT: How ePOLST will improve shared, informed medical decision-making: applying the eMOLST experience in New York (1 June, 2012) Free
P. Bomba
Oral Abstracts - Training and Education: Withdrawn (1 June, 2012) Free
Oral Abstracts - Training and Education: Evaluation of novel multimedia education to train doctors to discuss advance care planning (ACP) (1 June, 2012) Free
K Detering, J Renton, C Corke, S Milne, W Silvester
Oral Abstracts - Training and Education: Benefits of increasing skills in the care workforce in recognising end of life in dementia patients (1 June, 2012) Free
C. Bloomer, M. Thorn
Oral Abstracts - Training and Education: Medical students' experiences using an online decision aid to engage in advance care planning (1 June, 2012) Free
MJ Green, M Wilkes, M Robinson, C Dermart, BH Levi
Oral Abstracts - Home Care/Age Care: End-of-life preferences of patients enrolled in a palliative homecare programme for end-organ failure patients in Singapore (1 June, 2012) Free
HN Tan, LHL Wong
Oral Abstracts - Home Care/Age Care: Final evaluation of the “Making Health Choices” advance care planning in aged care project (1 June, 2012) Free
R Sjanta, L Jackson, R Fullam, V Lewis, W Silvester
Oral Abstracts - Home Care/Age Care: Providing sustainable, widespread adoption of ACP in care homes (1 June, 2012) Free
K Thomas, M Stobbart-Rowlands, L Giles
Oral Abstracts - Assisting with Decisions: A model for facilitating advance care planning telephonically: description and lessons learned (1 June, 2012) Free
I. Boettcher, R. Turner, M. Cooley, S. Prins, L. Briggs
Oral Abstracts - Home Care/Age Care: Using tele-health and web technologies to provide ACP education for informal caregivers (1 June, 2012) Free
S Grant
Oral Abstracts - Home Care/Age Care: Informed decision making in advance care planning: concordance of patient with physician diagnosis (1 June, 2012) Free
J. Schubart, L. Toran, BH. Levi, M. Whitehead, E. Farace, E. Lehmann, MJ. Green
Oral Abstracts - Home Care/Age Care: A framework for finding common ground with substitute decision-makers to achieve a patient's good death (1 June, 2012) Free
A Tan, D Manca
Oral Abstracts - Plenary Session 5 – Improving the Conversation: Involving Physicians in Upstream Conversations: The Serious Illness Communication Checklist (1 June, 2012) Free
S Block
Oral Abstracts - Plenary Session 5 – Improving the Conversation: Courageous Conversations: Advance Care Planning with Teens with Serious Medical Conditions and their Families (1 June, 2012) Free
M Lyons, L Briggs
Oral Abstracts - Plenary Session 5 – Improving the Conversation: Improving the communication skills through education (1 June, 2012) Free
L Emanuel
Oral Abstracts - Saturday 2 June 2012 Plenary Session 6 – Where Do We Need to Go? Making Patient-Centered Planning Part of All Care: Where are we going (or where do we need to go) with Advance Care Planning? (1 June, 2012) Free
J in der Schmitten, G Marckmann
Oral Abstracts - Saturday 2 June 2012 Plenary Session 6 – Where Do We Need to Go? Making Patient-Centered Planning Part of All Care: Presentation title to be advised (1 June, 2012) Free
W Silvester
Oral Abstracts - Saturday 2 June 2012 Plenary Session 6 – Where Do We Need to Go? Making Patient-Centered Planning Part of All Care: Advance Care Planning from a Canadian Perspective (1 June, 2012) Free
S Davison
Oral Abstracts - Saturday 2 June 2012 Plenary Session 6 – Where Do We Need to Go? Making Patient-Centered Planning Part of All Care: The Future of Advance Care Planning: Will it be a Bright One? (1 June, 2012) Free
L Briggs
Oral Abstracts - Workshop Session 1: Honouring choices Minnesota: scaling advance care planning to a diverse metropolitan population (1 June, 2012) Free
K Wilson, B Greene, B Hanley
Oral Abstracts - Workshop Session 1: The need for safeguards in advance care planning (1 June, 2012) Free
J Billings
Oral Abstracts - Workshop Session 1: Advance care planning and the management of implantable cardioverter defibrillators at the end of life. (1 June, 2012) Free
JM Beattie, JN Kirkpatrick
Oral Abstracts - Workshop Session 1: The five year plan: implementing comprehensive advance care planning in a large health system (1 June, 2012) Free
S Schellinger
Oral Abstracts - Workshop Session 2: A common sense approach to advance care planning: translation of theory into every day front-line practice (1 June, 2012) Free
A Wilkinson, J Lynn
Oral Abstracts - Workshop Session 2: Opportunities to improve end-of-life communication and decision-making for seriously ill hospitalised patients and their families (1 June, 2012) Free
JJ You, DK Heyland, P Dodek, F Lamontagne, D Barwich, C Tayler, P Porterfield, J Simon, Bert Enns
Oral Abstracts - Workshop Session 2: Transcending health literacy: using videos to aid advance care planning and healthcare decision-making (1 June, 2012) Free
C Vig, B Berg, J Simon
Oral Abstracts - Concurrent Session 4 ACP and Chronic Illness: Letter on future care; an individualised disease-specific future care plan for people with ALS (1 June, 2012) Free
H Herz, L Yang, N d'Abrew, K White, M Kiernan, P Butow
Oral Abstracts - Concurrent Session 4 ACP and Chronic Illness: Advance care planning by respiratory physicians with patients with COPD. A pilot survey (1 June, 2012) Free
TA Smith, M Kim, M Piza, PM Davidson, CR Jenkins, JM Ingham, JM Clayton
Oral Abstracts - Concurrent Session 4 ACP and Chronic Illness: Patient-centred ACP and cancer in Spain: insights on cultural barriers and clues to move forward (1 June, 2012) Free
J Júdez-Gutiérrez, A Pereira-Rico
Oral Abstracts - Concurrent Session 4 ACP and Chronic Illness: Advance care planning (ACP), and its impact in the renal unit (1 June, 2012) Free
W Silvester, K Wallis, D Chaffers, K Whiteside, K Detering
Oral Abstracts - Concurrent Session 4 ACP and Chronic Illness: Advance care planning: the journey of changing hospital culture in an in-centre dialysis unit (1 June, 2012) Free
J Grose, G Makiri
Oral Abstracts - Concurrent Session 4 ACP and Chronic Illness: Advance care planning and pulmonary rehabilitation: participation and patient perspectives (1 June, 2012) Free
M Nicholes, AT Burge, A Lee, S Purcell, B Miller, N Norris, S McArdle, S Sandilands, AE Holland
Oral Abstracts - ACP in Primary and Aged Care: National primary care audit in end of life care and ACP and recommendations for improvement (1 June, 2012) Free
K Thomas, H Corner, M Stobbart-Rowlands
Oral Abstracts - ACP in Primary and Aged Care: Withdrawn (1 June, 2012) Free
Oral Abstracts - ACP in Primary and Aged Care: Controlled follow-up survey of qualified advance directives two years after implementation of an ACP program (1 June, 2012) Free
J In Der Schmitten, C Mellert, K Wegscheider, G Marckmann
Oral Abstracts - ACP in Primary and Aged Care: The primary care palliative care programme in Auckland, New Zealand: an update (1 June, 2012) Free
S Rishworth, D Winstanley
Oral Abstracts - ACP in Primary and Aged Care: South Australian baby boomer advance care directive decision-making: CGT study of factors influencing ACD completion (1 June, 2012) Free
S Bradley
Oral Abstracts - ACP in Primary and Aged Care: CREATING SACRED SPACE FOR DYING: THE CHRYSALIS ROOM (1 June, 2012) Free
Loretta Downs
Oral Abstracts - ACP in Primary and Aged Care: Disease specific advance care planning in a large health system (1 June, 2012) Free
S Schellinger
Oral Abstracts - Decision-Making and Hospital Care: POLST forms within an acute care setting (1 June, 2012) Free
R Fullam, K Detering, W Silvester
Oral Abstracts - Decision-Making and Hospital Care: New guidelines for sepsis care integrating palliative care and end of life care concepts (1 June, 2012) Free
R Kleinpell
Oral Abstracts - Decision-Making and Hospital Care: Defining end of life care in one of Australia's busiest hospitals. (1 June, 2012) Free
J. Mitropoulos, B. Le
Oral Abstracts - Decision-Making and Hospital Care: Advance care planning evaluation in hospitalised elderly patients: a multicenter, prospective study (The ACCEPT Study) (1 June, 2012) Free
D Heyland, P Dodek, F Lamontagne
Oral Abstracts - Decision-Making and Hospital Care: The implementation of advance care planning at Hawaii Pacific Health (1 June, 2012) Free
M Ashton, MRN Cantillo
Oral Abstracts - ACP and Attitudes: What do people want at the end of life, with or without an advance directive? (1 June, 2012) Free
MPS Van Wijmen, HRW Pasman, GAM Widdershoven, BD Onwuteaka-Philipsen
Oral Abstracts - ACP and Attitudes: African American seniors' perspectives on advance care planning (1 June, 2012) Free
S Crump
Oral Abstracts - ACP and Attitudes: Utilisation of the advance health directive among older Australian rural adults: a qualitative study (1 June, 2012) Free
C Sinclair, K Auret, L Forrester, A Knight, A Burgess, C Bulsara
Oral Abstracts - ACP and Attitudes: ACP for people with intellectual disabilities: the views of family members and care staff (1 June, 2012) Free
G Bellamy, M Gott, M Boyd, K Prebble, H Neil
Oral Abstracts - ACP and Attitudes: A descriptive case study of grieving beliefs in a hospital setting: implications for advance care planning and end of life (1 June, 2012) Free
C Sexton
Oral Abstracts - ACP and Attitudes: Physicians faced to treatments refusals (1 June, 2012) Free
P Biclet
Posters Abstracts - Conceptual/Theoretical/Ethical/Research Questions Regarding Care Planning and End of Life Decision-Making (e.g., How to Best Measure the Impact of Advance Care Planning on Patients, Families, and Utilization of Health Services): Advance care planning for subjects with early dementia – a pilot study (1 June, 2012) Free
N Binte Ali, M Chan, P Anthony, WS Lim, MS Chong
Posters Abstracts - Conceptual/Theoretical/Ethical/Research Questions Regarding Care Planning and End of Life Decision-Making (e.g., How to Best Measure the Impact of Advance Care Planning on Patients, Families, and Utilization of Health Services): Advance care planning discussions among residents of LTC and DAL in Alberta (1 June, 2012) Free
C. Dyason, TL. Wityk Martin, J. Simon
Posters Abstracts - Conceptual/Theoretical/Ethical/Research Questions Regarding Care Planning and End of Life Decision-Making (e.g., How to Best Measure the Impact of Advance Care Planning on Patients, Families, and Utilization of Health Services): A clinical decision support tool to improve care planning in end-of-life cancer care (1 June, 2012) Free
K Elvidge
Posters Abstracts - Conceptual/Theoretical/Ethical/Research Questions Regarding Care Planning and End of Life Decision-Making (e.g., How to Best Measure the Impact of Advance Care Planning on Patients, Families, and Utilization of Health Services): The development and validation of a shorter version of the CANHELP Lite (1 June, 2012) Free
D Heyland, D Pichora, X Jiang, A Day, SR Cohen
Posters Abstracts - Conceptual/Theoretical/Ethical/Research Questions Regarding Care Planning and End of Life Decision-Making (e.g., How to Best Measure the Impact of Advance Care Planning on Patients, Families, and Utilization of Health Services): Advanced care planning for people with intellectual and developmental disabilities (1 June, 2012) Free
T. A. Savage, T. Moro, J. Boyden, A. Brown, K. Kavanaugh
Posters Abstracts - Conceptual/Theoretical/Ethical/Research Questions Regarding Care Planning and End of Life Decision-Making (e.g., How to Best Measure the Impact of Advance Care Planning on Patients, Families, and Utilization of Health Services): Practice and attitude toward advance care planning among Japanese palliative care physicians (1 June, 2012) Free
Yoshiyuki Kizawa, Satoru Tsuneto, Yasushi Abe
Posters Abstracts - Conceptual/Theoretical/Ethical/Research Questions Regarding Care Planning and End of Life Decision-Making (e.g., How to Best Measure the Impact of Advance Care Planning on Patients, Families, and Utilization of Health Services): Injecting social technology into advance care planning (1 June, 2012) Free
J Kraft
Posters Abstracts - Conceptual/Theoretical/Ethical/Research Questions Regarding Care Planning and End of Life Decision-Making (e.g., How to Best Measure the Impact of Advance Care Planning on Patients, Families, and Utilization of Health Services): Perspectives of community dwelling octogenarians about the use of life-sustaining technologies for their future care (1 June, 2012) Free
J. Kryworuchko, P. Strachan, R.D. Heyland, D.K. Heyland
Posters Abstracts - Conceptual/Theoretical/Ethical/Research Questions Regarding Care Planning and End of Life Decision-Making (e.g., How to Best Measure the Impact of Advance Care Planning on Patients, Families, and Utilization of Health Services): A public health initiative around advance care conversations and end of life Care (1 June, 2012) Free
M Matthiesen, J Ashton, K Froggatt
Posters Abstracts - Conceptual/Theoretical/Ethical/Research Questions Regarding Care Planning and End of Life Decision-Making (e.g., How to Best Measure the Impact of Advance Care Planning on Patients, Families, and Utilization of Health Services): Cultural concordance in advance care planning discussions: a blessing or a curse (1 June, 2012) Free
C Deamant, E Liu, O Mackie, R Shariff
Posters Abstracts - “Best Practice” Programs to Train Professionals to Facilitate the Planning Process with Different Populations or for Different Types of Decisions: Integrating palliative care and end of life care concepts for surgical ICU patients and staff (1 June, 2012) Free
Melissa Browning, Benson Wright, Ruth Kleinpell
Posters Abstracts - “Best Practice” Programs to Train Professionals to Facilitate the Planning Process with Different Populations or for Different Types of Decisions: Does physician remuneration improve advance care planning and end of life discussions in primary care? (1 June, 2012) Free
Andrew Gill, Jan Waugh, Jessica Simon
Posters Abstracts - “Best Practice” Programs to Train Professionals to Facilitate the Planning Process with Different Populations or for Different Types of Decisions: Increasing all staff awareness and skills to promote the conversation: a multi-staff, regional education approach (1 June, 2012) Free
M Matthiesen, K Wrigley
Posters Abstracts - “Best Practice” Programs to Train Professionals to Facilitate the Planning Process with Different Populations or for Different Types of Decisions: Integration of advanced care planning into an undergraduate nursing programme (1 June, 2012) Free
G Smith
Posters Abstracts - “Best Practice” Programs to Train Professionals to Facilitate the Planning Process with Different Populations or for Different Types of Decisions: A survey of advance care planning in care homes following the GSF care homes training (1 June, 2012) Free
Margaret Stobbart-Rowlands, Keri Thomas, Lucy Giles
Posters Abstracts - “Best Practice” Programs to Train Professionals to Facilitate the Planning Process with Different Populations or for Different Types of Decisions: Conversations that matter: using videos to model quality ACP conversations between clinicians and patients (1 June, 2012) Free
C Vig, B Berg, J Simon
Posters Abstracts - Effective Implementation Strategies for All Types of Care Planning Including Medical Records Systems, Electronic Registries, Documentation Tools, Effective Ways to Organise a Team Approach to Advance Care Planning within a Health Care Setting: Sowing seeds and building collaborations: challenges faced and learning points in starting systematic advance care planning in a tertiary hospital in Singapore (1 June, 2012) Free
RKP Chong, JSY Oh, RHL Ng, CH Poi, HYC Chau
Posters Abstracts - Effective Implementation Strategies for All Types of Care Planning Including Medical Records Systems, Electronic Registries, Documentation Tools, Effective Ways to Organise a Team Approach to Advance Care Planning within a Health Care Setting: Documentation of do not attempt cardiopulmonary resuscitation (DNACPR) orders – do electronic DNACPR order (eDNACPR) forms make a clinical difference over standardised paper DNACPR order (sDNACPR) forms? (1 June, 2012) Free
O Kayode, G Pabla, C Downing, J Speakman
Posters Abstracts - Effective Implementation Strategies for All Types of Care Planning Including Medical Records Systems, Electronic Registries, Documentation Tools, Effective Ways to Organise a Team Approach to Advance Care Planning within a Health Care Setting: Advance care planning supported by clinicians trained for end-of-life care in Japanese nursing homes (1 June, 2012) Free
M Nishikawa, Y Yokoe, H Miura, Y Hong, Y Yoshida, M Shibasaki, K Takamichi, N Okumura, H Endo, K Nakashima
Posters Abstracts - Effective Implementation Strategies for All Types of Care Planning Including Medical Records Systems, Electronic Registries, Documentation Tools, Effective Ways to Organise a Team Approach to Advance Care Planning within a Health Care Setting: Advance care planning needs, which is expected to end of life care teams in Japan (1 June, 2012) Free
Y Yokoe, M Nishikawa, H Miura, Y Hong, N Kubokawa, M Shibasaki, K Takamichi, S Kitamura, H Endo, K Nakashima
Posters Abstracts - Review and critique of public policy or legislative approach that supports or hinders advance care planning: Values and the advance care planning framework in New Zealand (1 June, 2012) Free
H.Y. Chan
Posters Abstracts - Effective Implementation Strategies for All Types of Care Planning Including Medical Records Systems, Electronic Registries, Documentation Tools, Effective Ways to Organise a Team Approach to Advance Care Planning within a Health Care Setting: Challenge of introducing advance care planning policy into Japan (1 June, 2012) Free
H Miura, M Nishikawa, YJ Hong, K Nakashima
Posters Abstracts - Community Engagement Strategies for Either Large, Diverse Populations or for Specific, Special Populations. Examples Include Neonatal or Pediatric Advance Care Planning, Care Planning with a New Immigrant Population, Planning with Patients before Implanting a Pace-Maker: Advance care planning measures towards enhancing good nutritional and health status of elderly people in Nigeria (1 June, 2012) Free
B Imonikebe
Posters Abstracts - Community Engagement Strategies for Either Large, Diverse Populations or for Specific, Special Populations. Examples Include Neonatal or Pediatric Advance Care Planning, Care Planning with a New Immigrant Population, Planning with Patients before Implanting a Pace-Maker: To encourage uptake of ACP in the community with the RCGP EOLC patient charter (1 June, 2012) Free
Keri Thomas

Electronic pages - Marie Curie Abstracts

Oral Presentations: Measuring benefits at end of life for economic evaluation: measure development and a ‘thinkaloud’ study (1 June, 2012) Free
J. Coast, E. Sutton, R. Orlando, K. Armour
Oral Presentations: The results of the invasive neurodestructive procedures in cancer pain pilot study (INPIC) What is the role of cordotomy in pain associated with malignant mesothelioma? (1 June, 2012) Free
M. Makin, J. Ellershaw, A. Leach, M. Poolman, M. Sharma, G. Jeffers, J. Bridson
Oral Presentations: Patients' experiences and understandings of taking part in clinical trials for advanced cancer: a metasynthesis of findings (1 June, 2012) Free
A. Nelson, M. Edwards, A. Byrne
Oral Presentations: Supportive, interactive staff training may improve outcomes for residents dying in a care home. (1 June, 2012) Free
E. Lewis-Holmes, E. Taylor, C. Pitfield, J. Morris, G. Wills, N. Carson, H. Jacobs, G. Livingston
Oral Presentations: Hypovitaminosis D in Hospice patients in a Caucasian West Midlands Population (1 June, 2012) Free
N.M. McCarron, C. Meystre, S. Wells, A.F. Jones, N. Gittoes, K. Armour, J. Hodson, C. Webster
Oral Presentations: Developing Patient Controlled Analgesia (PCA) in the home for children and young people (CYP) (1 June, 2012) Free
T. Boggs, D. Rajapske, P. Kelly, D. R. Hollowell, R. Howard, F. Craig, M. Bluebond-Langner
Oral Presentations: Evaluation of a rehabilitation service for patients living with and beyond cancer: a randomised controlled trial (1 June, 2012) Free
B. Leurent, J. Round, G. Fitzgerald, S. Davis, L. Jones
Posters: Nurses' decisions to use anticipatory prescriptions in end of life care: study overview (1 June, 2012) Free
E. Wilson, J. Brown, J. Seymour
Posters: ‘Unpacking the home’ – a social science approach to researching dying at home (1 June, 2012) Free
M. Turner, D. Seamark, C. Milligan, S. Brearley, X. Wang, S. Blake, S. Payne
Posters: The Responsive Needs Tool – unlocking communication of end of life care needs. (1 June, 2012) Free
B. Ball, B. Johnson, J. Bake
Posters: Parkinson's Disease Support Workers advise on symptom control (1 June, 2012) Free
W. G. Kernohan, M. Waldron, F. Hasson, D. McLaughlin, B. Cochrane
Posters: European model of palliative care for dementia: Study protocol (1 June, 2012) Free
N. Davies, S. Iliffe, L. Maio, J. Manthorpe, S. Ahmedzai
Posters: An evaluation of the use of traditional opioids and immediate-release fentanyl in the management of breakthrough cancer pain in an integrated cancer network (1 June, 2012) Free
A. Nwosu, K. Marley, E. Sulaivany, A. Dickman, C. Littlewood
Posters: “Mind the Gap”: Patient Knowledge and Understanding of Their Condition, Treatments and Prognosis Remains an Issue For Those With End Stage Heart Failure (ESHF) (1 June, 2012) Free
S. Browne, C. May, U. Macleod, F. Mair
Posters: Implementing the Liverpool Care Pathway for the Dying Patient in Intensive Care Version 12 (LCP ICU V12) across a regional critical care network (1 June, 2012) Free
D. Parsons, M. Gambles, L. Chapman
Posters: ‘Battling on’ and ‘blinkered’: carer experiences of home based care at the end of life (1 June, 2012) Free
E. Harrop, A. Byrne, A. Nelson
Posters: Palliative radiotherapy in addition to self-expanding metal stent for improving outcomes of dysphagia and survival in advanced oesophageal cancer: ROCS (Radiotherapy after Oesophageal Cancer Stenting) Study (1 June, 2012) Free
A. Byrne, D. Adamson, S. Sivell, G. Griffiths, T. Crosby, J. Staffurth, D. Cohen, J. Blazeby, J. Fitzgibbon, A. Nelson
Posters: Reversal of the British trends in place of death (1 June, 2012) Free
B. Gomes, N. Calanzani, I. J. Higginson
Posters: Clinical Care Tracker: a new member of community Specialist Palliative Care team (1 June, 2012) Free
J. Hayes, A. Nelson, K. Harry, L. Hayles, A. Byrne, K. Stephens
Posters: Bored to death? An exploratory study of boredom amongst hospice inpatients (1 June, 2012) Free
H. E. Leahy, R. E. Sheils, R. M. Sorley, P. M. Taylor, R. Lennard
Posters: It's getting harder to breath: non-invasive ventilation (NIV) in advanced chronic obstructive pulmonary disease (COPD) (1 June, 2012) Free
N. Khan, D. Munday
Posters: Improving rapid access to symptom control, psychological, social and spiritual support during out of hours period: Marie Curie Palliative Response Service (1 June, 2012) Free
A. Wilson
Posters: The prevalence of neurological disorders, including those of a palliative nature, in people aged 70 years and over in the Hai district of northern Tanzania (1 June, 2012) Free
F. Dewhurst, M. J. Dewhurst, W. K. Gray, W. Howlett, N. Warren, G. Orega, R. W. Walker
Posters: How many people need expert symptom assessment but are not in the last year of life? (1 June, 2012) Free
J. Maher, H. McConnel
Posters: Volunteer activity in end–of-life care: a national survey of current practice (1 June, 2012) Free
R. France, L. Sampson, R. Bravery, J. Low, B. Candy
Posters: Mortality and medical care after bereavement: a general practice cohort study (1 June, 2012) Free
M. King, M. Varagunam, I. Petersen, L. Jones, L. Marston, I. Nareth
Posters: Patients who do not nominate a preferred place of death are more likely to die in hospital (1 June, 2012) Free
L. Arnold, A. Finucane, D. Oxenham

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